PERTHES KIDS FOUNDATION was originally established in 2007, by CBS Survivor: Fiji Winner, Earl Cole, in partnership with the University of Kansas Endowment Fund, as the Earl Cole Fund for Perthes Research. In 2015, Perthes Kids Foundation became an independent, non-profit organization, 501(c)(3), solely dedicated to Legg-Calvé-Perthes disease. Cole was diagnosed with Legg-Calvé-Perthes Disease as a child and founded this charity to help raise awareness, funds, further research, find a cure, and connect others dealing with this rare hip bone disease. With a combined social network of 20,000+ strong, Perthes Kids Foundation is the leading organization dedicated to a growing community of parents, kids, doctors, family members and adults with Perthes, from all over the world, working together to take action, advocate, educate, and support each other, as we fight this disease.

Perthes Kids Foundation has a mission to make an immediate, positive impact, on the lives of children diagnosed with Legg-Calvé-Perthes disease. Our work has been featured in various media outlets, such as CBS, FOX, Peoplemagazine, GOOD magazine and Yahoo!News.We are also co-producers on a film documentary (Crutch, 2019 release date)about a world renowned artist skateboarder with bilateral Perthes disease, that features our USA camp and some of our Perthes Kids. We encourage visitors of this website to share and/or donate to our cause, in helping children and adults, dealing with the pain of Perthes disease. All donations are tax deductible (Federal Tax ID:47-3841121).

Perthes Kids Foundation has recently formed a partnership with Miracle Flights, to provide free flights for kids with Perthes disease to attend Camp Perthes USA visit Perthes doctors around the country! See the national press release here:

A diagnosis of Legg-Calvé-Perthes syndrome can be overwhelming, but the journey doesn't have to be -- especially when properly informed about the condition.These resources will help one be armed with the strongest weapon against Perthes: knowledge.

When a child is diagnosed with Perthes disease, it is perhaps scarier for the parent than it is the child.While the condition is indeed a serious one, fears can be eased by getting familiar with what exactly to watch out for and expect -- and by getting familiar with other parents and families coping with, navigating, and surviving the same situation.

Perthes symptoms stages

FAQs about Perthes

504 Plan: child disabilities school

Mental emotional health

Further reading

Online support groups

Perthes Kids Foundation is proud to partner with Betsy Miller and Thinking Ink Press, author and publisher of The Parents’ Guide to Perthes: Understanding Legg-Calvé-Perthes Disease. This book is one of the firsts of its kind, and has been required reading for the past several years for parents new to Perthes disease, as well as, the experienced. The book contains invaluable and easy-to-understand information, from first symptoms and diagnosis, to various treatments and healing.

If you are a parent who’s child has recently been diagnosed with Perthes, it can be quite overwhelming. The Parents Guide to Perthes will help you understand what it all means, and what your next steps should be. You can now download a free copy of the first chapter by clicking on the button below.

Every adult with Perthes was once a Perthes Kid. You understand more than anyone on how the challenges of this disease not only reshapes your hip, but also helps shape your life. Again, Legg-Calvé-Perthes disease is not life threatening, but it is life altering. Children faced with the limitations and patience needed to progress with Perthes, usually turn out to be good, outstanding adults, that can go on to do amazing things, despite their earlier condition.

PKF encourages any adult who had Perthes as a child, to give back and help make a difference for the kids going through Perthes right now.Please consider sharing your story in one of our social media groups, making a donation, becoming an advocacy volunteer for our organization, or a volunteer at one of our camps.Most adults with Perthes have never met anyone else with Perthes, so volunteering at Camp Perthes is not only inspirational to the kids, but it can also be very emotional and therapeutic for the adult. To learn more about volunteering click here.

Want to help with Perthes research? We invite you to participate in the ADULT PERTHES SURVEY from the International Perthes Study Group. Our goal is to have over 1000 adults who were diagnosed with Perthes in their childhood, to fill out the survey so we can learn about how you’ve been doing since your diagnosis and earlier treatments.

While education and mental preparation are important, the ultimate key to living with and surviving Perthes disease is receiving the proper treatment from a medical specialist.Learn more about the journey of every Perthes patient over the years and that of the condition itself since its initial discovery.

Perthes treatments by age

Perthes Medical Studies

Find a Perthes doctor

The 100+ year history of Legg-Calvé-Perthes Disease

Perthes Global Market Research Report

NORD Rare Disease Fact Sheet

Perthes Fact Sheet (1 page)

The Perthes Kids Foundation has been invited to participate and speak at the International Perthes Study Group Conference in Dallas, TX, USA, for the past few years. We usually give a full presentation to provide important insight to some of the top orthopaedic surgeons in the world, on a perspective of Legg-Calvé-Perthes disease they rarely get to hear. In addition to the X-rays, MRIs and science behind Perthes, the heart and soul of this disease, will always be the children adults who actually go through it. That is why we do what we do, in working together, to hopefully one day find the cause and a cure for this painful disease.

As the disease's impact stretches far beyond the bodies of those challenged by Perthes, to the hearts and minds of the entire family as well, Perthes Kids Foundation (PKF) is doing its part in not only bringing awareness to the disease, but also offering support and a plan of action to those families, by connecting and building them into a larger global community online, and in real life.

Due to the generosity of corporate sponsors and individual donors, we have been able to provide customized activities and memorable events for Perthes. We have even bigger fundraising goals in 2020, to do even more good works in helping kids and parents dealing with this disease.

We have been serving and contributing to the Perthes community since 2007, having decades of life experience with the disease.Our passion to raise awareness is authentic, with a rich history in directly impacting the lives of children and adults diagnosed with LCPD.

With a combination of social media and other digital channels, our network has grown exponentially through the years, giving us access to a wide range of people and Perthes supporters across the globe.

Whether organizing events and programs such as our long-running camps,continually raising awareness and funds for Perthes research and education, or connecting with children and their families one-on-one, Perthes Kids Foundation is committed to helping, collaborating and supporting the entire global Perthes community in all aspects, from every angle. We fully understand what you're going through and are here to serve.

There are multiple ways you can support Perthes Kids Foundation and its ongoing efforts to improve the lives of children and families living with Legg-Calvé-Perthes disease.

You can sign up to participate in our ongoing programs, such as Camp Perthes, Volunteers and Global Ambassadors.

You can truly make a difference in the lives of children, and even help send a kid to camp, by donating to support Perthes Kids Foundation and our great cause.

Stay current on all of PKF's latest activities and get involved with the Perthes community at large, by connecting with our Twitter, Facebook, Instagram and LinkedIn pages.

LOS ANGELES OFFICE

4601 Coldwater Canyon Ave. Ste. 101
Studio City, CA 91604

info@pertheskids.org

(424) 259-1604