We are Cavernoma Alliance UKFounded in 2005, our aim is to provide support and information for all those affected by cavernoma including friends, family, carers and professionals.About UsWhat are Cavernoma?A cavernoma is made up of abnormal blood vessels and can be found in the brain and/or spinal cord and looks like a raspberry.Find out moreCare StudyFind out about our research study to find out what approach is best for treatment of people with a brain cavernoma.More InformationCOVID-19Find out more about COVID-19, the vaccine and CavernomaMore InfoMore InformationSupport for youWe aim to support people affected by cavernoma in a number of ways from providing information, putting them in contact with others, hosting events or simply being on the end of the telephone for a chat.Our Services background_background:classic,shape_divider_top:arrow}"> Latest News New Volunteer School Liaison Officer

CAUK is proud to announce our new Volunteer School Liaison Officer. Meet her here, and find out what shell be doing and how she can help.

Read More » September 17, 2021 This years Marathon Runners

Find out who this years amazing Marathon runners are!

Read More » September 16, 2021 Covid-19 Vaccination Update

Angioma Alliance (our USA sister organisation) have just published the current outcomes from the Covid-19 Survey that they have organised, available here.

Read More » September 9, 2021
Latest Blogs Annual Forum 2021 – Minimally invasive approaches, cavernomas and decision making with Mr Basssel Zebian

Minimally invasive approaches, cavernomas and decision making with Bassel Zebian, Consultant Paediatric and Adult Neurosurgeon, Kings College Hospital London

Read More » October 7, 2021 Annual Forum 2021 Introduction to CARE Study with Professor Rustam Al-Shahi Salman and Mr Neil Kitchen

Cavernomas: A Randomised Effectiveness (CARE) Study discussion with Professor Rustam Al-Shahi Salman and Mr Neil Kitchen

Read More » October 7, 2021 Here Comes Autumn

In a year when the world has been upside down and inside out, nature offers us predictability. Seasons change. The earth moves in relation to the sun and we have less light, less warmth and all around us plants and animals react to reflect this shift.

Read More » October 7, 2021
Latest Webinars Annual Forum 2021 – Minimally invasive approaches, cavernomas and decision making with Mr Basssel Zebian

Minimally invasive approaches, cavernomas and decision making with Bassel Zebian, Consultant Paediatric and Adult Neurosurgeon, Kings College Hospital London

Read More » October 7, 2021 Annual Forum 2021 Introduction to CARE Study with Professor Rustam Al-Shahi Salman and Mr Neil Kitchen

Cavernomas: A Randomised Effectiveness (CARE) Study discussion with Professor Rustam Al-Shahi Salman and Mr Neil Kitchen

Read More » October 7, 2021 How Cavernoma Grow : The role of a gene mutation linked to some Cancers with David White (Science of Cavernoma)

Join our science advisor David White in a new part of his Science of Cavernoma

Read More » May 7, 2021
What our members say...
CAUK and all its members have made me feel ‘normal’. I am among people who know exactly how I feel. It’s as simple as that. I am not a person with a rare condition here, I am part of a group of people with the same condition. In real life I might never meet someone with a cavernoma,but here everyone has one/many. So I’m not an oddity here. Lorna, Scotland Member since 2014 CAUK is incredible. It provides invaluable support online, an informative website with vital information, access to professional opinions and face to face meetings at events, amazing lectures and the opportunity to meet others who have experienced cavernoma.
A world without CAUK doesn’t bear thinking about! Abi, Surry Member since 2012
Get in touch with us +44 (0) 1305 213876

available from 11:00 14:00

Email hello@cavernoma.org.uk