The Ontario Federation for Cerebral Palsy

Time 2020-10-28 01:04:41

Web Name: The Ontario Federation for Cerebral Palsy

WebSite: http://www.ofcp.ca

ID:96628

Keywords:

Federation,Ontario,The,

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Learn About CPGuide to CPWhat is CPPublicationsOFCP VideosOther Resources LinksFundingActivity FundingAssistive DevicesScholarships AwardsResearchGrantsOur ProgramsPlanningChildren FamiliesMembershipWhat's Newe-BulletinAnnouncements PressStudiesResearch ParticipantsCalendar of EventsView LatestOFCP e-BulletinANNOUNCEMENT FOR OFCP MEMBERSLEAF EDUCATION ENRICHMENT FUNDOPENING OCTOBER 22, 2020OFCP is pleased to announce a new LEAF Education Enrichment Fund – an additional funding opportunity to our Members to help them cover additional educational expenses they may have. The following are the guidelines and application processes regarding this new LEAF Education Enrichment Fund.1. OFCP offices remain temporarily closed and we are accepting online applications only and not applications that are sent by postal mail or fax.2. All students who are OFCP Members and are attending an Ontario Board of Education Elementary or Secondary School, or an Ontario College/University are eligible to apply for funding. Maximum eligible one time amount per applicant is $500.00.3. We will accept quotes for items and activities requested for funding assistance and will also accept receipts for items and activities purchased as of July 1, 2020 to December 31, 2020 until all funds dedicated to OFCP LEAF Education Enrichment Fund are utilized.4. Eligible items and activities may now include, but are not limited to:TutorsText booksEducational apps and subscriptionsLaptops, desktopsiPadsHeadphonesSchool suppliesTuition feesAnd any other tools to support learningNot limited to the above list, OFCP will try and accommodate each request as it pertains to the learning expenses during the time of COVID-19 emergency situation. APPLICATION FORM HERE Important Announcement about LEAF funding:As we are all aware, the global COVID 19crisis we now face has brought many challenges to all, with greater risk for those that have underlying medical conditions due to their age or disability. OFCP recognizes that we are enduring a time that can feel frightening, fluid and ever changing.To our Members:Your well being and safety is our number one priority. We continue to support you and our staff have successfully transitioned to "working in place " with full access to the equipment/supplies that we need to work remotely.We are checking our emails, phone lines and social media platforms constantly to answer your questions and link you to resources.Finally, we have adapted and broadened our LEAF funding program criteria to better meet your needs during this time. LEAF is traditionally seen as a program/camp/activity fund for members to access but we are expanding this for the SPRING LEAF APPLICATION session, transitioning to "LIFE EMERGENCY ACTION FUND" to include items and equipment you may need to manage through this time. Things like food/food supplements, increased transportation cost, personal protective equipment, personal hygiene items are a few of the many things we know you must have and keep stock of. A list of suggested items will be available that you can review and get ideas from.Another change, OFCP will only accept online LEAF and ADFP application submissions during this time, which is a system we are implementing to receive and process your requests faster. Also, we are changing the way to reimburse you for the approved items to ensure you receive these funds directly, without having to wait for a mail delivery.Finally, I want to assure our members that we are here for you. The Board of Directors and OFCP team have been instrumental in making these changes to offer a small level of support to our members as we go through these difficult times together.Please know that we will continue to monitor current events as they unfold. Our commitment to you is absolute and we will work toward other initiatives that assist you as we stay connected as a Federation, as one, as all.Yours Truly,Gordana Skrba, Executive Director (Interim)SPRING LEAF 2020 Transitions into a ‘Life Emergency Action Fund’– OPENING MARCH 30, 2020ADDENDUMIMPORTANT INFORMATION FOR OFCP MEMBERSDue to the evolving situation surrounding the Coronavirus (COVID-19), OFCP has made the following temporary changes and additions to the LEAF Guidelines and Application process to assist our Members cover additional expenses that they may have:OFCP offices are temporarily closed and we will be able to accept online applications only and not applications that are sent by postal mailMaximum eligible amount per applicant is $400.00We will still accept quotes for items and activities as per Spring LEAF Guidelines 2020ORwe will also accept receipts for items or activities already purchased and dated from March 12, 2020 until all funds dedicated to OFCP Life Emergency Action Fund are utilized.Eligible items and activities may now include, but are not limited to:Food/Food supplements (ie. Boost, Ensure)Personal Protective Equipment (ie. gloves, face masks)Sanitizing/disinfecting products (ie. wipes, spray)Personal hygiene products/pharmacy supplies (ie. incontinence supplies, cleansing wipes)Transportation costs (receipted transportation costs due to the pandemic)Not limited to the above list, OFCP will try and accommodate each request as it pertains to the COVID-19 emergency situation.More information regarding direct payment for approved items and activities and easy step by step instructions to help you with your direct payment are availableon the application form linked below. Apply for Life Emergency Action Fund HERE IMPORTANT ANNOUNCEMENTTo Our Members, Our Stakeholders and the PublicI am writing to inform you about OFCP's response tothe recent and evolvingsituation surrounding the Coronavirus (COVID-19).There is no higher priority for us than the health, safety and well being of ourMembers and Employees. We are monitoring all communication from theGovernment of Canada, Government of Ontario, Public Health Agency of Canada,Ontario Public Health, the World Health Organization (WHO) and governmentagencies, to stay on top of this evolving situation.We continue to take measures to help reduce the potential exposure risk to ourMembers and Employees. To help prevent the spread of virus infections, OntarioFederation for Cerebral Palsy has made the difficult decision to close our officesto the public as of Tuesday, March 17th, 2020, until further notice.However, our staff will be available to answer any emails and phone calls, and weare asking you to pleasecontact us by email atinfo@ofcp.ca or call us at 416-244-9686 or Toll Free 1-877-244-9686. Your calls will be returned within 24 hours.This decision was made with you, our members and staff well-being in mind, theutmost importance to us and will continue to be our top priority moving forward.We encourage you to use all necessary precautions to keep safe from contractingthe virus.We apologize for any inconvenience this may cause.For information and updates on the Coronavirus, please visit thePublic HealthAgency of Canada website.Gordana Skrba, Executive Director, InterimIMPORTANT ANNOUNCEMENT FROM OFCP ASSISTIVE DEVICES FUNDING PROGRAMJanuary 3, 2020 We are very pleased to share with you that the ADFP will open to accept new applications on January 24, 2020. Updated application forms, guidelines and a list of equipment funded are available. ONLY the new updated application forms will be accepted.If you have any questions or concerns please contact us at 416 244 9686, ext. 221 or toll free 1-877-244-9686, ext. 221.Resources Across My Province (RAMP)RAMP is a provincial resource tool that provides information and links to the many service providers, organizations, and programs that individuals, families and professionals are looking for that are specific to cerebral palsy.RAMP will provide you with a starting point to search and navigate through the many resources and services you may find useful.Brain Disorders in Ontario:Prevalence, Incidence and Costs from Health Administrative DataOFCP is pleased to share the final reportof Brain Disorders in Ontario: Prevalence, Incidence, and Costs from Health Administrative Data.This Report is the culmination of a two-year collaboration between the Ontario Brain Institute and the Institute for Clinical Evaluative Sciences which involved the contributions from clinicians, patients, and advocates. OFCP was very proud to be involved and to have an opportunity to contribute in this major undertaking. Below is an info-graphic, followed by the briefing note, followed by the link to the report.It is all about the brain.All the various conditions in the scope of mental health and neurologic disease manifest in a change of brain function. This report examines these otherwise disparate conditions collectively as ‘brain disorders’- an integrated approach to view them as diseases of a single organ. This is a necessary first step to bring greater awareness and attention to the health consequences and care needs of those affected by all disorders of the brain. As a group, the brain disorders included in this report demonstrate the breadth and diversity of conditions affecting Ontarians. Although those included in this report are only a subset of the hundreds of brain disorders, they represent many of the most common and impactful disorders affecting the healthcare system and society. There are many conditions missing, including highly prevalent disorders such as autism, depression, and addiction, but over time methods will be developed to measure these as well.Brain disorders are a big issue that will continue to get bigger.Individuals with brain disorders represent a large and growing population, which will increase as our population continues to age. Brain disorders are a growing public health concern: they exist as chronic conditions with no known cures and individuals with brain disorders often require lifelong treatment and care. This can also be very hard on caregivers who support individuals living with brain disorders – the economic and societal impact is multiplied, reaching far beyond those directly affected. The growing prevalence and tremendous economic and societal impact of brain disorders is why it is critical that the Government of Ontario continue to place a strong focus on brain research and innovation by supporting the Ontario Brain Institute and other groups working towards improving brain health.A baseline measurement of brain disorders is needed to improve care and support.To date, there have been no region-specific estimates of the prevalence and economic impact of brain disorders. Defining brain disorders, and measuring them from the perspective of the healthcare system, helps estimate the needs of affected individuals and their caregivers. This report lays the groundwork necessary for the healthcare system to respond to these needs by planning or building services and support, and by creating greater capacity for care in areas of need. By documenting the sheer number of individuals affected by brain disorders, this report confirms the need for more research and better care for individuals living with brain disorders which is why the OBI was established.Health administrative data can be used for disease surveillance.The methods used in this report to measure prevalence, incidence, and cost provide several advantages over survey or other self-report data sets: the large number of individuals contained in the data holdings improves precision and generalizability of estimates, and the longitudinal aspect of the data allows the examination of time trends in data. This approach is a starting point to better understand the present issues but it is not without limitations. This report only captures those who have interacted with the healthcare system in the year of measure (2010), and requires that individuals also receive a diagnosis or drug therapy related to their brain disorder. Therefore the results may underestimate the true number of individuals with each disorder for various reasons including stigma, lack of access to care, or temporary lack of need of care.As a new resource, this report was created with the following objectives: To estimate the prevalence and incidence of brain disorders from population-based health administrative data To provide an overview of costs associated with all publically provided health care services used by individuals with brain disorders To present evidence to inform program and resource planning, policy and decision-making regarding brain disorders in the Ontario health systemThe report contains data on thirteen brain disorders: Brain tumor (benign and primary malignant), cerebral palsy, dementia including Alzheimer’s disease, epilepsy, motor neuron disease, multiple sclerosis, parkinsonism including Parkinson’s disease, schizophrenia, spina bifida, spinal cord injury, stroke and transient ischemic attack, and traumatic brain injury Number and proportion of persons with the selected brain disorder by sex, age group, rural or urban residence, and neighbourhood income quintile (as of 2010/11) Age- and sex-adjusted prevalence and incidence of the selected brain disorder (from 2004/05 to 2010/11 in Ontario and by Local Health Integration Network) Crude prevalence of the selected brain disorder, by sex and age group (from 2004/05 to 2010/11) Distribution of the costs associated with one year of health system use for persons with the selected brain disorder, by age group Proportion of costs associated with one year of health system use for persons with the selected brain disorder, by type of health care service and age groupHere is the link to the report:https://www.ices.on.ca/Publications/Atlases-and-Reports/2015/Brain-Disorders-in-OntarioOFCP Website Quick LinksProgramsAssistive DevicesActivity FundingChildren FamiliesFundingMembershipPlanningAbout OFCPContact OFCPAbout OFCPPrivacyAODA PolicyDisclaimerDonate to OFCPWebsite DirectoryResourcesHenson Trust InformationODSP InformationRDSP InformationPublicationsTax TipsVideosAbout Cerebral PalsyPartners for PlanningThe OFCP is proud to be a member of the following organizations:United Way TorontoNeurological Health Charities CanadaCanada HelpsAdvantAge OntarioThe Community Ethics Network (CEN)Federated Health CharitiesThe OFCP is not associated with OCPSA - The Ontario Cerebral Palsy Sports Association.

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The Ontario Federation for Cerebral Palsy (OFCP) is a non-profit, charitable organization that strives to address the needs of people with cerebral palsy in the province of Ontario. The Ontario Federation for Cerebral Palsy is committed to supporting independence, inclusion, choice and full integration of all persons with cerebral palsy.

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