Home | Epilepsy Society

Web Name: Home | Epilepsy Society

WebSite: http://www.epilepsysociety.org.uk

ID:186249

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Home,Epilepsy,Society,

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Seizures were crushing Evan’s dream of becoming a Paralympian. He is now seizure free thanks to our world leading research. Due to current circumstances in relation to the coronavirus some of our services have been reduced with our staff working from home. Despite this our top priority at Epilepsy Society is to support people living with epilepsy. You may notice a slight change in our communications. For the time being, we will focus our efforts on making sure you have all the information you need from us to help you as best we can in the current climate.  Our range of care is tailored to the needs of each individual, and our professional staff are committed to maximising the life potential of everyone within our care homes. Epilepsy Society's Chalfont Centre is unique in bringing together intellectual capital to form a powerhouse multidisciplinary team who contribute to a wide ranging spectrum of research. Our confidential epilepsy helpline and online informationgivehelp and support to people who are affected by epilepsy. We are a voice for people with epilepsy, striving to push epilepsy up the political agenda and bring about change at governmentlevel. The Chalfont Centre and our Gowers unit lead the way in the most advanced techniques for the diagnosis and treatment of epilepsy. We are the leading charity care provider, where people love to work and live. Our wide range of care is tailored to the needs of each individual, and our professional staff are committed to maximising the life potential of everyone within our care homes. Our campaigns team lobby government and decision-makers on the issues that matter to people with epilepsy. From safer medicines for pregnant women to the dangers of online harm, and from medicines supply to public transport access, we raise awareness of the daily challenges facing people with epilepsy – putting your needs at the heart of what we do. We are incredibly proud to announce that 10-year-old Zach Eagling – the figurehead of our Zach’s Law campaign – has been shortlisted as an Unsung Hero in the Third Sector Excellence Awards.The prestigious awards are held annually to recognise excellence, innovation, courage and commitment across the charity sector. We are incredibly proud to announce that 10-year-old Zach Eagling – the figurehead of our Zach’s Law campaign – has been shortlisted as an Unsung Hero in the Third Sector Excellence Awards. We are thrilled to see that the Law Commission is calling on the government to introduce a specific offence to deal with flashing images posted on social media to trigger seizures in people with epilepsy. Callers to our Helpline have expressed concerns that the latest version of the patient information leaflet for the Covid-19 Astra Zeneca vaccine, mentions seizures as a possible side effect. Last night, in the House of Commons, Emma Hardy MP called on the government to back the Epilepsy Society’s campaign for funding into vital research into safer epilepsy medications during pregnancy. Two new initiatives have been launched to help ensure that all women with epilepsy, of child-bearing age, are aware of the risks associated with the medication valproate, during pregnancy. MPs, scientists and clinicians today backed Epilepsy Society’s call for the government to stop babies from being born with preventable disabilities, by investing more money into urgent research.  The ultimate goals of our current research are to spearhead personalised treatment and to incorporate genomic diagnosis into the NHS for people with epilepsy. Therapeutic drug monitoring (TDM) is an area of clinical chemistry that specialises in measuring medication levels (concentrations) in patients, usually through blood samples but also through saliva samples. Read how we are working to understand the genetic architecture of each individual person's epilepsy through our world leading genomics research programme. Our Helpline is open five days a week, Monday to Friday 9am to 4pm, (Wednesday 9am to 7.30pm). You can also reach us by emailhelpline@epilepsysociety.org.uk. In these challenging times, charities like Epilepsy Society rely on donations to ensure vital services for our beneficiaries can continue. If you can spare a donation or pledge a monthly gift, you will be helping to ensure we continue to support everyone affected by epilepsy. Thank you.Could helpdistribute tailored information about epilepsy, ensuring the first five leaflets are freeCould helpto ensure that someone who desperately needs to talk about their epilepsy can call our helplineCould helpforward our world-leading research projects, leading to more accurate, personalised treatmentCould helpus get 10 crucial information packs to people at the point of diagnosisCould helpforward our world-leading research projects, leading to more accurate, personalised treatmentCould helpour research team to analyse genomics data, which will lead to better seizure controlWe send monthly e-newsletters to keep you informed with tips for managing epilepsy, the latest news, inspirational stories, fundraising opportunities and further information from Epilepsy Society.It is always your choice as to whether you want to receive information from us. You may opt-out of our marketing communications by clicking the ‘unsubscribe’ link at the end of our marketing emails or through our unsubscribe number 01494 601 300.Every effort is made to ensure that all our information is correct and up to date. However, Epilepsy Society is unable to provide a medical opinion on specific cases. Responses to enquiries contain information relating to the general principles of investigation and management of epilepsy. Answers are not, and should not be assumed to be, direct medical advice and is not intended to be a substitute for medical guidance from your own doctors. Epilepsy Society and any third party cannot be held responsible for any actions taken as a result of using this service. Any references made to other organisations does not imply any endorsement by Epilepsy Society.

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