News

09/15/2022

BLOG: This Week in HD Research

09/14/2022

HDSA Disability Chat: JHD & Social Security

09/12/2022

BLOG: Disability Tips

09/08/2022

HDSA Research Webinar: All You Need To Know About PROOF-HD

08/29/2022

HDBuzz: Serious side effects reported for some people treated with the huntingtin-lowering drug AMT-130, currently in clinical trials

08/24/2022

Novartis Provides Community Update Regarding VIBRANT-HD

08/12/2022

HDSA Research Webinar: HD Clinical Trials Update

08/11/2022

Now Accepting 2023 HDSA Centers of Excellence Letters of Intent

08/10/2022

Sage Therapeutics Provides Positive Update on the SURVEYOR Study

08/10/2022

HDSA Films presents KING’S CRUSADE (Part 2)

08/09/2022

HDSA Statement Regarding VIBRANT-HD Trial

08/09/2022

uniQure Announces Second Quarter 2022 Financial Results and Highlights Recent Company Progress

07/26/2022

HDSA Films presents KING’S CRUSADE (Part 1)

07/12/2022

Highlights from CHDI’s 17th Annual Huntington’s Disease Therapeutics Conference

06/30/2022

HDSA Awards 2022 Berman-Topper Family HD Career Development Fellowship

06/23/2022

uniQure Announces Update on Low-Dose Cohort in Phase I/II Clinical Trial of AMT-130 Gene Therapy for the Treatment of Huntington’s Disease

06/20/2022

HDBuzz: How clever computers are helping us understand Huntington’s disease

06/16/2022

New system that defines Huntington’s disease will ‘revolutionise’ drug trials

06/15/2022

HDBuzz: A new roadmap to track Huntington’s disease progression

06/14/2022

37th Annual HDSA Convention In Atlanta Brings The Global Huntington’s Disease Community Together Again

06/07/2022

Annexon Biosciences announces positive results from a Phase 2 clinical trial evaluating ANX005 in people with HD

05/28/2022

HDSA Films presents THE STORY OF E.J. + KATY

05/20/2022

HDSA Wins 2022 HD Hockey Classic & Raises More Than $15,000

05/11/2022

HDSA Announces Winners of the 2022 Donald A. King Summer Research Fellowship

03/31/2022

PTC Therapeutics Announces Initiation of PIVOT-HD Phase 2 Clinical Trial to Evaluate PTC518 in Patients with Huntington’s Disease

03/18/2022

HDBuzz: A spoonful of branaplam helps the huntingtin go down

03/08/2022

HDBuzz: Day 3 of the 2022 HD Therapeutics Conference

03/04/2022

HDBuzz: Day 2 of the 2022 HD Therapeutics Conference

03/03/2022

HDBuzz: Day 1 of the 2022 HD Therapeutics Conference

02/22/2022

Sage Therapeutics Provides Important Update On The Clinical Development Program For Sage’s Investigational Drug, SAGE-718.

02/18/2022

HDBuzz: Shining a spotlight on huntingtin: a tool to measure huntingtin-lowering in real time

02/09/2022

Huntington’s Disease Society of America Awards Nearly $1.9 Million to Network of Fifty-Five HDSA Centers Of Excellence

02/07/2022

uniQure Announces Dosing of First Patients in European Open-Label Clinical Trial of AMT-130 Gene Therapy in Huntington’s Disease

02/02/2022

HDBuzz: Oral drug may change the story for huntingtin lowering

02/01/2022

Register Today for the 37th Annual HDSA Convention in Atlanta

01/31/2022

HDSA Publishes 2021 Year In Review Magazine

01/27/2022

BREAKING NEWS: Novartis Provides Community Update On The Status Of The VIBRANT-HD Trial

01/21/2022

VIDEO: Roche Community Presentation of New Tominersen Data

01/18/2022

BREAKING NEWS: Roche Has Announced That The Tominersen Research Programme Will Continue With A New Phase II Trial

01/04/2022

Annexon Biosciences Reports Promising Interim Phase 2 Data Showing Improvement in Clinical Measures with ANX005 in Huntington’s Disease Following Six-Month Treatment

12/24/2021

VIDEO: Happy Holidays from Louise Vetter

12/16/2021

uniQure Announces Clinical Update on First Patients in Phase I/II Clinical Trial of AMT-130 Gene Therapy for the Treatment of Huntington’s Disease

12/08/2021

The Marker is Now Available! Read HDSA’s 2021 Research Report

12/07/2021

Neurocrine Biosciences Announces Positive Phase 3 Data for KINECT-HD Study Evaluating Valbenazine for Chorea Associated with Huntington’s Disease

12/03/2021

Dr. Jeff Carroll & Dr. Beth Hoffman Join HDSA’s National Board of Trustees

11/16/2021

HDSA Coffee Walk with Jennifer Simpson

11/15/2021

TAKE ACTION: HDSA’s 7 Days of Action

11/12/2021

HDSA Films presents THE DOHERTYS: FINDING THE FUNNY

11/10/2021

HDSA Applauds Chairman Neal on Inclusion of Paid Family & Medical Leave in Build Back Better Act

11/10/2021

More than $64,000 Raised at the TCS New York City Marathon to Support HDSA

11/01/2021

HDSA Welcomes Dr. Arik Johnson as New Chief Mission Officer 

10/19/2021

Virtual 7th Annual Freeze HD Raises More Than $211,000 To Support The Fight Against Huntington’s Disease

10/14/2021

HDSA Awards $749,000 to HD Human Biology Projects

09/29/2021

HDBuzz: Q&A with Roche about GENERATION-HD1

09/22/2021

HDSA Publishes 2020 Annual Report

09/16/2021

Sage Therapeutics Receives Fast Track Designation for SAGE-718 for the Treatment of Huntington’s Disease

09/10/2021

Community Statement from Roche-Genentech Regarding GENERATION-HD1 Data

08/30/2021

HDBuzz: Creation of a molecular “dimmer switch” advances gene editing

08/16/2021

HDBuzz: Unpacking Recent Gene Therapy Press

08/09/2021

Update from Voyager Therapeutics

08/06/2021

HDSA Films Presents The Osborns: Our Legacy

08/04/2021

VIDEO: Watch Kala Booth Discuss Huntington’s Disease & the HD Parity Act In Front of Congress

07/29/2021

HDSA Applauds E&C Subcommittee for Highlighting Burden of Huntington’s Disease, Reiterates Call to Pass Bipartisan HD Parity Act

07/21/2021

HDBuzz: A First For CRISPR Gene Editing Could Have Wider Applications For Human Disease

07/02/2021

NOW AVAILABLE: Virtual 36th Annual HDSA Convention Recorded Sessions

06/14/2021

Virtual 36th Annual HDSA Convention Welcomes Thousands from Around the Globe

06/12/2021

HDSA Awards Two Berman-Topper Family HD Career Development Fellowships

06/10/2021

HDSA Partners with PatientsLikeMe to Create an Integrated Online Community for both Patients & Caregivers

05/28/2021

uniQure’s AMT-130 for Treatment of Huntington’s Disease Advances in Phase I/II Clinical Trial

04/30/2021

HDSA RESEARCH WEBINAR: Roche Presents GENERATION-HD1 Data

04/30/2021

HDBuzz: Day 3 Recap from the 2021 HD Therapeutics Conference

04/29/2021

HDBuzz: Day 2 Recap from the 2021 HD Therapeutics Conference

04/28/2021

HDBuzz: Day 1 Recap from the 2021 HD Therapeutics Conference

04/26/2021

HDSA Announces Winners of 2021 Donald A. King Summer Research Fellowship

04/21/2021

Now Accepting 2021 National Award Nominations

04/05/2021

uniQure Announces Completion of Enrollment in First Cohort of Phase I/II Clinical Trial of AMT-130

04/02/2021

Register Today For Free | Virtual 36th Annual HDSA Convention

03/30/2021

HDBuzz: Wave Life Sciences PRECISION-HD Trials

03/29/2021

Disappointing Update from Wave Regarding PRECISION-HD Clinical Trials

03/26/2021

VIDEO: A Message from Roche about the GENERATION-HD1 Trial News

03/25/2021

RESEARCH WEBINAR | Generation-HD1 Trial News: What does this mean and where do we go from here?

03/23/2021

HDBuzz: Sad News From Roche

03/22/2021

Roche Provides a Disappointing Update on Tominersen

03/19/2021

HDSA Reintroduces the HD Parity Act

03/18/2021

HDSA Films presents My Father, My Hero

03/12/2021

Now Accepting 2021 Human Biology Project Letters of Intent

02/25/2021

HDBuzz: Vaccines and HD

02/18/2021

The 36th Annual HDSA Convention Goes Virtual!

02/02/2021

HDSA Expands Centers of Excellence Program to Fifty-Four Sites

01/29/2021

HDSA Publishes 2020 Year In Review Magazine

01/06/2021

Dr. Victor Sung Named Chair of HDSA’s National Board of Trustees

01/01/2021

Happy New Year!

12/17/2020

NEW EPISODE: Here’s The Deal with Dick Johnson Is Dead

12/10/2020

HDSA Publishes The Marker: 2020 Research Report

12/03/2020

HDSA Awards Four HD Human Biology Project Fellowships For 2020

10/06/2020

HDBUZZ: Updates from the EHDN Plenary Meeting 2020

09/28/2020

VIRTUAL 6TH ANNUAL FREEZE HD RAISES $200,000 FOR HDSA

09/10/2020

HDSA Publishes 2019 Annual Report

08/26/2020

HDBuzz: When genes are unstable: Targeting somatic instability in HD

08/25/2020

NEW EPISODE: Here’s The Deal with Talking to Kids about Huntington’s Disease

08/18/2020

HDBuzz: Changes In Brain Development Mean Some Brain Regions May Be Slacking Off

08/14/2020

HDBuzz: Caution Urged for the Use of Gene-Editing Technology CRISPR

08/10/2020

Anne Leserman announces her retirement from HDSA

07/28/2020

Submit Your Letter of Interest to Become a 2021 HDSA Center of Excellence

07/22/2020

NEW EPISODE: Here’s The Deal with End of Life & HD

07/06/2020

Huntington’s Disease Featured on ABC News Live Prime

06/24/2020

HDSA Center of Excellence at Ohio State Conducts First Gene Therapy Clinical Trial for HD

06/19/2020

uniQure Announces First Two Patients Treated in Phase I/II Clinical Trial of AMT-130 for the Treatment of Huntington’s Disease

06/15/2020

Virtual HDSA Convention Recorded Sessions Now Available

06/10/2020

Virtual 35th Annual HDSA Convention Welcomes Thousands from Across the Globe 

06/03/2020

HDSA Supports The Fight Against Racism

06/01/2020

Register for the Virtual 35th Annual HDSA Convention

05/29/2020

Postcard from Palm Springs: Highlights from the 2020 CHDI HD Therapeutics Conference

05/27/2020

HDSA Awards Berman-Topper Family HD Career Development Fellowship

05/15/2020

International Huntington’s Disease Awareness Day – May 15th

05/07/2020

HDSA Announces Winners of 2020 Donald A. King Summer Research Fellowship

04/20/2020

COMMUNITY STATEMENT: Update On Tominersen (RG6042)

04/17/2020

NEW EPISODE: Here’s The Deal with Self-Care

04/06/2020

HDBuzz: What does COVID-19 mean for Huntington’s disease families and HD research?

04/03/2020

HD & COVID-19 PANDEMIC RESOURCES

04/02/2020

NEW EPISODE: Here’s The Deal with COVID-19 & HD

03/27/2020

FREQUENTLY ASKED QUESTIONS: Disability & COVID-19

03/27/2020

Community Statement

03/26/2020

NEW EPISODE: Here’s The Deal with Disability

03/20/2020

HDSA Community Update: HDSA’s 35th Annual Convention Goes Virtual!

03/18/2020

HDSA Community Update: HD & COVID-19

03/13/2020

HDSA Community Update

03/13/2020

HDBuzz: New Molecule Can Reverse The Huntington’s Disease Mutation In Lab Models

03/05/2020

HDSA Convention Community Statement

03/03/2020

HDBuzz: Day 3 at HD Therapeutics Conference

03/02/2020

HDSA Films Presents ALLIE & JOE

03/02/2020

HDBuzz: Day 2 at HD Therapeutics Conference

02/28/2020

HDBuzz: Day 1 at HD Therapeutics Conference

02/05/2020

HDSA Announces Fifty 2020 Centers of Excellence

01/17/2020

HDSA Publishes 2019 Year In Review Magazine

01/17/2020

REGISTER TODAY! 35th Annual HDSA Convention in New Orleans

12/30/2019

Community Letter from Wave Life Sciences Regarding Topline Results from PRECISION-HD2

12/30/2019

Wave Life Sciences Announces Topline Data and Addition of Higher Dose Cohort in Ongoing Phase 1b/2a PRECISION-HD2 Trial in Huntington’s Disease

12/23/2019

HDSA Earns Fourth Consecutive 4-Star Rating From Charity Navigator

12/23/2019

HDSA Awards Inaugural Clinical Research Pilot Grants to Four Centers of Excellence

12/05/2019

HDSA Listed As Top 10 Volunteer Opportunities In New York City By Great Nonprofits

11/27/2019

HDSA Welcomes Three Trustees to National Board

11/19/2019

HDSA Publishes The Marker – 2019 Research Report

11/06/2019

HDSA’s New York City Marathon Team Raises More Than $133,000 To Support The Fight Against HD

10/15/2019

HDSA Awards Five 2019 HD Human Biology Project Fellowships

10/15/2019

Community Statement from Roche / Genentech

10/01/2019

View 5th Annual Freeze HD Red Carpet and Event Photos

10/01/2019

5th Annual Freeze HD Raises More Than $420,000 To Support HDSA

09/11/2019

2018 HDSA Annual Report

08/05/2019

HDBUZZ: Exciting New Huntingtin Lowering Tool Described

07/30/2019

Now Accepting 2020 HDSA Centers of Excellence Letters of Interest

07/23/2019

VIDEO: Here’s The Deal With Caregiving While Positive

07/15/2019

VIDEO: 34th Annual HDSA Convention Recap

07/01/2019

HDSA Sets New Attendance Record at the 34th Annual HDSA Convention in Boston

06/28/2019

Community Statement from uniQure

06/20/2019

HDSA & CHDI Foundation Launch HD Legacy to Promote Brain Donation for HD Research

06/11/2019

HDSA Adds Allison Bartlett as Manager of Disability Programs

05/31/2019

HDSA Awards 2019 Berman-Topper Family HD Career Development Fellowships

05/15/2019

Huntington’s Disease Parity Act Is Reintroduced

05/07/2019

HDBUZZ: Fresh Updates from First Huntingtin Lowering Study Publication

04/18/2019

Postcard from Palm Springs: Highlights from the 2019 CHDI HD Therapeutics Conference

04/16/2019

HDSA Announces Winners of 2019 Donald A. King Summer Research Fellowship

04/11/2019

HDSA Films Presents “The Hodgsons” Short Film

04/10/2019

Update on PRECISION-HD program

04/04/2019

BLOG: This Week in HD Research

03/22/2019

HDBUZZ: An Updated Trial Design for Roche’s Huntingtin Lowering Trial: Roche announces an update to the GENERATION HD1 trial after reviewing the ASO open label extension study

03/21/2019

COMMUNITY STATEMENT FROM ROCHE/GENENTECH: Amendment to the RG6042 Phase III GENERATION HD1 study design

03/14/2019

HDBUZZ: Genetic Hiccups That Protect Against Huntington’s Disease

03/04/2019

HDBUZZ: Huntington’s Disease Therapeutics Conference 2019 – Day 3 Recap

03/01/2019

HDBUZZ: Huntington’s Disease Therapeutics Conference 2019 – Day 2 Recap

02/11/2019

Huntington’s Disease Featured On The Today Show

02/06/2019

HDSA Expands Centers of Excellence Program to Forty-Seven

01/30/2019

HDBuzz: Huntington’s Disease Goes Viral as uniQure Inches Ahead in Gene Therapy Race

01/28/2019

First Patients Enrolled in HD Natural History & GENERATION HD1 Clinical Studies

01/24/2019

HDSA Publishes 2018 Year In Review Magazine

01/22/2019

uniQure Announces FDA Clearance of Investigational New Drug Application for AMT-130 in Huntington’s Disease

01/16/2019

HDSA Launches Youth Social Worker Program

12/19/2018

BREAKING NEWS: Roche/Genentech Announces US Locations of GENERATION-HD1 Drug Study

12/11/2018

HDSA’s 2018 Research Report Now Available

12/10/2018

EJ Garner Appointed as Chair of HDSA’s National Board of Trustees

12/04/2018

HDBUZZ: Advances on many fronts in the battle against the protein that causes Huntington’s disease

11/10/2018

Genentech/Roche Announces US & Canadian Locations of Observational Natural History Study

10/23/2018

HDSA Awards Five HD Human Biology Project Fellowships for 2018

10/17/2018

FAQs: Upcoming Genentech/Roche Studies

10/03/2018

HDBuzz: Kids Get Huntington’s Disease Too

09/26/2018

RESEARCH WEBINAR: Update from Roche/Genentech on GENERATION-HD1 & RG6042

09/18/2018

HDBuzz: The GENERATION-HD1 trial will test whether RG6042 – formerly Ionis-HTTRx – slows the progression of Huntington’s disease

09/16/2018

Update on RG6042 (formerly known as IONIS-HTTRx) Huntington’s disease global development programme: Two clinical studies to begin by end of 2018

09/16/2018

Roche’s Phase 3 Trial for RG6042 (formerly IONIS HTT-Rx) has been announced: GENERATION-HD1

08/03/2018

Roche Media Release Regarding PRIME Designation Granted by European Medicines Agency for RG6042 (formerly IONIS-HTT Rx)

08/02/2018

IONIS-HTT Rx (RG6042) Granted PRIME Designation by the European Medicines Agency for the Treatment of People with Huntington’s Disease

08/01/2018

Now Accepting 2019 HDSA Centers of Excellence Letters of Interest

07/10/2018

HDBUZZ: First Dolly, now Piglet; a new Huntington’s disease pig knock-in model confirmed

06/27/2018

VIDEO: 33rd Annual HDSA Convention Recap

06/13/2018

33rd Annual HDSA Convention Recap

06/13/2018

VIDEO: HD Buzz at the 33rd Annual HDSA Convention

06/13/2018

VIDEO: 33rd Annual HDSA Convention Research Forum

06/13/2018

VIDEO: 33rd Annual HDSA Convention Opening Ceremony

06/07/2018

Getting to know Roche & Genentech, RG6042 (formerly known as IONIS-HTTRx )

05/15/2018

HDSA Awards Berman-Topper Family HD Career Development Fellowship

04/27/2018

FAQs Regarding the Latest Huntingtin-Lowering Update from Ionis & Roche

04/24/2018

New Data from IONIS-HTT Rx Phase 1/2 Study Demonstrates Correlation Between Reduction of Disease-causing Protein and Improvement in Clinical Measures of Huntington’s Disease

04/24/2018

HDSA Announces Winners of 2018 Donald A. King Summer Research Fellowship

04/20/2018

Roche Community Statement Regarding RG6042 (formerly known as IONIS-HTTRx )

04/19/2018

HDBuzz: Exciting Experiments in “Open Science” by Huntington’s Researchers

03/29/2018

VIDEO: Postcard from CHDI Meetings in Palm Springs & Malta

03/12/2018

HDSA Partners with the ALS Association & Teva Pharmaceuticals to Identify Novel Therapeutic Targets for CNS Disorders

03/05/2018

HDSA Earns Second Consecutive 4-Star Rating from Charity Navigator

03/05/2018

HDBUZZ: Huntington’s disease therapeutics conference 2018 – day 3

03/01/2018

IONIS-HTT Rx Community Statement

03/01/2018

IONIS-HTT Rx : Top-Line Data Demonstrate Significant Reductions of Disease-Causing Mutant Huntingtin Protein in People with Huntington’s Disease

03/01/2018

HDBUZZ: Huntington’s disease therapeutics conference 2018 – day 2

02/28/2018

HDBUZZ- Huntington’s disease therapeutics conference 2018 – day 1

02/13/2018

HDSA Announces Forty-Three Centers of Excellence

02/02/2018

CEO Memo: Chorea Medication Co-Pay Assistance Programs Information

12/12/2017

FAQs: Ionis Huntingtin-Lowering Trial

12/11/2017

Statement by Louise Vetter, President & CEO of the Huntington’s Disease Society of America regarding Ionis-HTTRx Announcement

12/11/2017

BREAKING NEWS: Update on the Status of the IONIS-HTTRx Program and its Future

11/20/2017

Huntington’s Disease Society of America Announces the Launch of a Three-Part Online Accredited Continuing Education Course for Community Based Primary Care Providers, Neurologists and Psychiatrists

11/14/2017

HDSA Honors Sportscaster Chris Berman & Raises More Than $250,000

11/14/2017

HDSA Pays Tribute to Founder Marjorie Guthrie & 50 Years of the Guthrie Family Legacy

11/02/2017

HDBUZZ: Switch off the genome editor when you’re done

10/15/2017

Update confirms Huntington’s disease ‘gene silencing’ trial on track

10/12/2017

Huntington’s Disease Society of America Awards Four HD Human Biology Project Fellowships for 2017

09/25/2017

HDBUZZ: New roles for huntingtin: removing a healthy protein to understand its function

09/19/2017

Global Huntington’s Disease Patient Advocacy Organizations Unite to Form Huntington’s Disease Coalition for Patient Engagement (HD-COPE)

09/18/2017

Huntington’s Disease Society of America’s 50th Anniversary to Celebrate the Life & Legacy of Its Founder Marjorie Guthrie

08/01/2017

HealthWell Foundation Opens Huntington’s Disease Fund to Assist Medicare Patients

07/28/2017

HDBUZZ: A step forward for gene editing: CRISPR-Cas9 and HD

07/17/2017

Wave Life Sciences Initiates Two Phase 1b/2a Clinical Trials: PRECISION-HD1 and PRECISION-HD2 in Patients with Huntington’s Disease

06/29/2017

Exclusive HDBuzz interview with Prof Lesley Jones (Cardiff University) and Prof Sarah Tabrizi (University College London) about their new paper describing a ‘genetic modifier’ for Huntington’s disease.

06/22/2017

Exciting News: IONIS provides update on Huntingtin lowering trial

06/21/2017

HUNTINGTON’S DISEASE SOCIETY OF AMERICA LAUNCHES FIRST-OF-ITS-KIND FREE TELEHEALTH COUNSELING FOR HD FAMILIES

06/08/2017

New study reveals a potential HD biomarker

05/30/2017

HUNTINGTON’S DISEASE SOCIETY OF AMERICA AWARDS BERMAN-TOPPER FAMILY HD CAREER DEVELOPMENT FELLOWSHIPS RESEARCHERS FROM CALIFORNIA AND CANADA AWARDED PRESTIGIOUS GRANT

05/24/2017

Huntington’s Disease Parity Act Reintroduced to Waive Two-Year Waiting Period for Medicare Coverage for those with Huntington’s Disease

05/16/2017

Huntington’s Disease Society of America Raises Nearly $40,000 at Guthrie Sessions Live in New York City

05/15/2017

Huntington’s Disease Society of America Announces Winners of 2017 Donald A. King Summer Research Fellowship

05/15/2017

Huntington’s Disease Society of America Premieres Her Mother’s Daughter Documentary During HD Awareness Month

05/08/2017

Has a “wonder drug” for dementia been discovered? (Spoiler alert: no.)

05/02/2017

Huntington’s Disease Society of America Collaborates with HealthWell Foundation to Launch Movement Disorders Fund to Provide Financial Assistance to Medicare Patients

05/01/2017

Huntington’s Disease Therapeutics Conference 2017 – Day 3

05/01/2017

Huntington’s Disease Therapeutics Conference 2017 – Day 2

04/27/2017

Huntington’s Disease Therapeutics Conference 2017 – Day 1

04/21/2017

Two recent studies show how a cellular border control system goes wrong in HD, opening new avenues for HD research.

04/14/2017

Pope Francis To Meet With The Global Huntington’s Community To Shine A Light On And Lift Stigma Of Disease

04/05/2017

HDBuzz article – FDA approves a new drug for symptoms of Huntington’s disease

03/29/2017

Sheep can help us to identify HD biomarkers and recognize metabolic changes that occur before symptoms develop.

03/28/2017

2017 National Awards Nominations

03/13/2017

Save the Date- For the largest global gathering of the HD community!

02/28/2017

Huntington’s Disease Society of America Announces Premiere for Juvenile Huntington’s Disease Documentary

02/24/2017

Weeding out the truth: can cannabis improve Huntington’s?

02/22/2017

Huntingtin grabs a hammer: DNA repair in HD

02/10/2017

The benefits of migration, highlighted in Huntington’s disease

02/08/2017

Huntington’s Disease Society of America Announces Forty-One 2017 HDSA Centers of Excellence

01/19/2017

Huntington’s Disease Society of America Unveils HDNavigator Mobile App

01/12/2017

HDBuzz: Treasure your exceptions – using outliers to understand Huntington’s disease onset and progression

12/19/2016

Pfizer Amaryllis trial ends : no improvement in Huntington’s disease symptoms

12/06/2016

HDSA has published the 2016 Research Report which provides in-depth Huntington’s disease research information and highlights from 2016.

12/02/2016

Huntington’s Disease Society of America to Provide 1,000 Free Liftware Level Devices to People Living with Huntington’s Disease

11/22/2016

HDSA Earns Top-Rating from CharityWatch

11/15/2016

Huntington’s Disease Society of America AWARDS $930,000 to nine new HD Human Biology fellows

11/01/2016

Important advances in next generation genome editing tools for Huntington’s Disease

10/03/2016

HDBuzz helps untangle the results of the PRIDE-HD trial of pridopidine

09/23/2016

EuroBuzz 2016: The Euro-HD Network Meeting in The Hague

09/19/2016

Exciting Press Release from Teva Regarding Pridopidine: Possibly the first disease modifying drug for HD

08/30/2016

New technology enables researchers to find ultra-rare mutations in the HD gene, distinct from the one causing HD

08/22/2016

HD Support & Care Network and Huntington’s Disease Society of America Partner for Stronger HD Support Groups in California and Arizona

08/17/2016

Deutetrabenazine for Huntington’s disease: a positive trial but the FDA says no? Not exactly…

08/02/2016

A support system gone wrong – glial cells contribute to HD symptoms

07/18/2016

Huntington’s Disease Society of America’s 2017 HDSA Center of Excellence Program Now Accepting Letters of Interest

07/08/2016

Huntington’s Disease Community Scores Major Victory with Social Security Criteria

07/05/2016

Slightly long CAG repeats are more common than we thought

06/29/2016

Early exposure to the HD protein may cause life-long symptoms

06/21/2016

WAVE Life Sciences Receives Orphan Drug Designation from FDA for its Lead Candidate Designed to Treat Huntington’s Disease

06/20/2016

Electron beam snaps best images yet of Huntington’s disease protein

06/14/2016

Select Videos From HDSA’s 31st Annual Convention Now Available

06/10/2016

Huntington’s Disease Society of America Hosts the 2nd Largest Convention in 31 Years

06/07/2016

Huntingtin takes a trip: harmful proteins pass between brain cells

06/03/2016

Watch us Live from the 31st Annual HDSA Convention

06/01/2016

HDSA National Board of Trustees is asking for your help developing a new five-year plan that will chart the organization’s goals from 2017-2021.

05/17/2016

Postcard from Palm Springs

05/10/2016

Huntington’s Disease Society of America awards first-ever Berman-topper Family HD Career Development Fellowship

05/03/2016

Important drug targets yielded by new genetic study of HD

05/02/2016

Huntington’s Disease Society of America Launches #LetsTalkAboutHD Campaign During Huntington’s Disease Awareness Month in May

04/28/2016

Huntington’s Disease Society of America Releases Updated “Genetic Testing Protocol for Huntington’s Disease”

04/18/2016

Thinking clearly about the earliest symptoms of HD and which brain regions control them

04/18/2016

Huntington’s Disease Society of America Announces Winners of 2016 Donald A. King Summer Research Fellowship

03/28/2016

2016 HDSA NATIONAL AWARDS NOMINATIONS

03/10/2016

How NOT to write a news article about a clinical trial

02/29/2016

HDBuzz article – Huntington’s Disease Therapeutics Conference 2016 – day 3

02/26/2016

HDBuzz article – Huntington’s Disease Therapeutics Conference 2016 – day 2

02/24/2016

HDBuzz article – Huntington’s Disease Therapeutics Conference 2016 – day 1

02/05/2016

Huntington’s Disease Society of America Partners with WeHaveAFace.org to Increase Access to The Huntington’s Disease Project: Removing the Mask

02/01/2016

Huntington’s Disease Society of America Announces Thirty-Nine 2016 HDSA Centers of Excellence

02/01/2016

Harnessing the power of viruses to treat Huntington’s disease

01/25/2016

Through a Broader Lens: Looking at Non-Motor Symptoms in HD

01/22/2016

HDSA Releases 2015 Year in Review

12/23/2015

HDSA Releases 2015 Research Investor’s Report

12/18/2015

Looking Past the Spin: Results from a Clinical Trial of Cysteamine

12/15/2015

An existing drug could give a boost to HD brain cells – but it may need more testing before it’s back in the clinic

12/10/2015

Raptor Plans to Advance RP103 in a Registration Study

12/07/2015

New HD Career Development Fellowship Announced by Huntington’s Disease Society of America

12/02/2015

Through the eyes of a friend: changes in mood and behavior in early HD

12/02/2015

Huntington’s Disease Society of America Adds Call Center Component to HD TrialFinder

12/01/2015

Huntington’s Disease Society of America Receives 4-Star Rating From Charity Navigator

11/25/2015

A multiple sclerosis drug that works for Huntington’s disease: the real deal or too good to be true?

11/25/2015

Huntington’s Disease Society of America Now Accepting Applications for the 2016 Donald A. King Summer Research Fellowship

11/03/2015

Huntington’s Disease Society of America’s New York City Marathon Team Raises More Than $125,000

11/02/2015

Fourth Annual Strike Out HD Bowling Event Hosted by New York Giant Geoff Schwartz Raises Nearly $50,000

10/20/2015

HDBuzz- Liftoff: First humans treated with gene silencing drugs for HD!

10/09/2015

HDBuzz primer: Clinical trial designs and phases

10/05/2015

Huntington’s Disease Society of America Announces 2015 HD Human Biology Project Grant Recipients

09/23/2015

FDA Opens 60 Day Open Comment Period

09/22/2015

Hundreds of HD Families Join FDA Hearing to Shape Drug Development for Huntington’s Disease

09/17/2015

HDBUZZ- A Few Bad Seeds: Using Brain Fluid to Grow Clumps in Brain Cells

09/11/2015

CNN “NEW DAY” Hosts Alisyn Camerota & Chris Cuomo raise $10,000 for the Huntington’s Disease Society of America

08/31/2015

Deadline To Tell Us Your Thoughts Has Been Extended!

08/17/2015

HDSA Announces 2016 Call for Letters of Interest for Center of Excellence Program

08/05/2015

Patient-Focused Drug Discovery Meeting at the FDA on Huntington’s Disease

07/30/2015

Scientists identify genetic factors that alter the clinical onset of HD in landmark study

07/29/2015

Would ewe believe it? GM1, sheep and Huntington’s disease

07/21/2015

ISIS Pharmaceuticals Initiates Clinical Study of Huntingtin Lowering Drug in HD Patients

07/02/2015

30th Annual Convention is a Huge Success for the Huntington’s Disease Society of America

06/22/2015

Calling all HD families: Our time to be heard is now!

06/19/2015

Huntington’s Disease Society Of America Receives CHARITYWATCH Top-Rated Status

06/19/2015

HDSA Supports 21st Century Cures Act

06/16/2015

NIH Names Walter J. Koroshetz, M.D. Director of the National Institute of Neurological Disorders and Stroke

06/02/2015

Life in HD Earns Rave Reviews for the Huntington’s Disease Society of America

06/02/2015

HDBUZZ: Switching it up: variety in the HD gene affects symptom onset

05/26/2015

2015 Postcard from Palm Springs

05/13/2015

HDBuzz article – A faulty filter? Blood vessel changes in Huntington’s disease

05/12/2015

2015 Huntington’s Disease Therapeutics Conference and taking part in trials

05/07/2015

Gene variant determines early or late onset of Huntington’s disease

05/01/2015

Life in HD: A Conversation with Lisa Genova Tickets Now on Sale

04/22/2015

Huntington’s Disease Society of America Announces Winners of 2015 Donald A. King Summer Research Fellowship

04/21/2015

Lighting the way: A new biomarker for Huntington’s disease

04/07/2015

Huntington’s Disease Society of America Launches HD TrialFinder First-Of-Its-Kind Clinical Trial Matching Service For Huntington’s Disease

04/07/2015

New York Times Bestselling Author Lisa Genova to release Inside the O’Briens

01/29/2015

Law Enforcement Toolkit II Webinar Now Available

01/29/2015

Huntington’s Disease Society of America Announces First-Ever HD Human Biology Project Awards

01/29/2015

Huntington’s Disease Society of America Endorses Enroll-HD

01/29/2015

Huntington’s Disease Society of America Announces Winners of the 2014 Donald A. King Summer Research Fellowship

01/29/2015

Pride-HD Study Enrolling Patients Globally to Further Evaluate Pridopidine for the Symptomatic Treatment of Huntington’s Disease

01/29/2015

HDSA appoints Director of Marketing & Communications

01/29/2015

World leader in movement disorders Professor Ira Shoulson joins Prana Board

01/29/2015

Pitt Study Demonstrates How Huntington’s Disease Protein Disrupts a Novel Cellular Pathway to Cause Death of Neurons

01/28/2015

Huntington’s Disease Society of America Launches First “HD News” App

01/28/2015

2CARE HD Clinical Trial Stopped Early for Lack of Benefit

01/28/2015

HDBuzz: 2CARE Study of Coenzyme Q for Huntington’s Disease Ends

01/28/2015

Auspex Pharmaceuticals Completes Enrollment in Phase 3 Clinical Trial of SD-809 in Chorea Associated With Huntington’s Disease (FIRST-HD)

01/28/2015

Huntington’s Disease Society of America Awards Additional HD Human Biology Project

01/28/2015

Jang-Ho Cha, MD, PhD Appointed Chairman of the Board of Trustees at the Huntington’s Disease Society of America

01/28/2015

Global Outcomes Data and Possible New Therapies in the Huntington’s Pipeline

Events

9/13/2022 12PM

Disability Chat: JHD and Social Security – Child SSI and Adult Child Disability Benefits
, NY

9/17/2022 11:00 AM

Team Hope Walk- Indiana
Sahm Park 6801 E 91st St, Indianapolis, IN 46250

9/17/2022 9AM

Team Hope Walk- Anita Sabedra
Midlebrook Greenbelt Park, 16203 Dunmoor Drive, Houston, TX 77059

9/17/2022 12PM

Team Hope Walk- Boise, ID
Julius M. Kleiner Memorial Park 1900 N Records Ave, Meridian, ID 83642

9/17/2021 10:30AM

2nd Annual Brittany’s Hope for Huntington’s Charity Golf Tournament
East Bay Golf Club 702 Country Club Drive, Largo, FL 33771

9/17/2022 10:00AM

Team Hope Walk- Lansing, MI
Granger Meadows Park, 1745 Granger Meadows Ln., Lansing, MI 48906

9/17/2022 10AM

Team Hope Walk- St. Louis, MO
Tilles Park 9551 Litzsinger, St. Louis, MO 63124

10/22/2022 10AM

Team Hope Walk- Tewksbury, MA (Lowell, MA)
Heritage State Park Sampas Pavilion 160 Pawtucket Boulevard, Lowell, MA 01854

9/18/2022 9AM

Team Hope Walk- Erie, PA
Presque Isle State Park ,Beach 1, Erie Runners Club Pavilion 301 Peninsula Dr., Erie, PA 16505

9/18/2022 12PM

Team Hope Walk- West Virginia
New Stage at the Barbour County Fairgrounds 227 Fairgrounds Way, Belington, WVA 26250

9/18/2022 4PM

Team Hope Walk- Louisville, KY
The Harbor Lawn at Waterfront 231 Witherspoon St, Louisville, KY 40202

9/18/2022 2PM

Team Hope Walk- Oklahoma
Choctaw Creek Park 2001 N Harper Road, Choctaw, OK 73020

9/18/2022 9AM

Team Hope Walk- Long Island, NY
Wantagh Park 1 King Road The shelter at the south end of parking area #2 and right next to central picnic area 1., Wantagh, NY 11793

9/18/2022 10:00AM

Team Hope Walk- Detroit, MI
Memorial Park, 31050 Woodwards Ave., Royal Oak, MI 48073

9/24/2022 11:30AM

Team Hope Walk- West Michigan
Grand Ravines Lodge, 9920 42nd Avenue, Jenison, MI 49428

9/24/2022 10AM

Team Hope Walk-Portland, OR
Jackson Middle School, 10625 SW 35th Ave, Portland, OR 97219

9/24/2022 9:00AM

Team Hope Walk- NOLA & Education Day
Ochsner Medical Center, 1514 Jefferson Hwy., New Orleans, LA 70121

9/24/2022 3PM

Music on the Vine
Chateau Le Gari Winery, 305 S Main Street, Marlborough, CT 06447

9/24/2022 9:30AM

Team Hope Walk- Sacramento, CA
River Walk Park- Sacramento 651 2nd St., Sacramento, CA 95605

9/24/2022 8AM

South Florida’s Hope for Huntington’s Golf Tournament
Atlantic National Golf Course 6400 Grand Lacuna Blvd, Lake Worth, FL 33467

9/24/2022 11AM

2022 Classic Car Road Rally- North Carolina
Mayflower Seafood Restaurant, Rural Hall, NC

9/24/2022 10AM

Team Hope Walk- New Hampshire
Surrette Park Off of Route 132 Across from the library, Northfield, NH 03276

9/25/2022 12:00PM

2022 UGLR Golf Tournament
Crescent Farms Golf Club, Eureka, MO 63025

9/24/2022 12:30PM

Team Hope Walk- Virginia Beach
Mount Trashmore Park 310 Edwin Dr, Virginia Beach, VA 23462

9/24/2022 1PM

Team Hope Walk- New York City
Pier 46, Hudson River Park, New York, NY 10014

9/25/2022 11AM

Team Hope Walk- Rhode Island
Colt State Park Route 114, Bristol, RI 02809

9/30/2022 12:30PM

Good Guy Golf Classic
SkyWay Golf Course, 515 Duncan Ave, Jersey City, NJ 07306

10/1/2022

Team Hope Walk- Arkansas
Rock City Harley Davidson, 400 Gateway Grove Loop, Little Rock, AR 72210

10/1/2022 10:30AM

HDSA Wellness & Education Day
Wojcik Conference Center 1200 West Algonquin Road, Palatine, IL 60067

10/1/2022 10:00 AM

Team Hope Walk- Central Ohio
Blacklick Park, 6975 E. Livingston Ave., Reynoldsburg, OH 43068

10/1/22 10AM

Team Hope Walk- Delaware
Cape Henlopen State Park Main Pavilion/Bike Loop 15099 Cape Henlopen Drive, Lewes, DE 19958

10/1/2022 10AM

Team Hope Walk- San Francisco, CA
Sports Basement at the Presidio 610 Old Mission Street, San Francisco, CA 94129

10/1/2022 9AM

Team Hope Walk- Phoenix, AZ
Desert Breeze Park 650 N Desert Breeze Blvd. East, Chandler, AZ 85226

10/1/2022 9:00AM

Team Hope Walk- Lehigh Valley
David M. Petzold Memorial Pavilion at the Upper Saucon Township Community Park 3231 Preston Ln, Bethlehem, PA 18015

10/02/2022 9:30AM

Team Hope Walk- NJ & Oktoberfest
Roosevelt Park, 151 Parsonage Rd, Edison, NJ 08837

10/7/2022 10AM

2022 Northeast Ohio Golf For A Cure
Shale Creek 5420 Wolff Rd., Medina, MI 44256

10/7/2022 7PM

A Night at Ferus Artisan Ales – Benefiting HDSA
Ferus Artisan Ales, 101 Beech St. Suite 111, Trussville, AL 35173

10/2/2022 2:00PM

Team Hope Walk- Columbia, SC
Community Park of Irmo 7507 Eastview Drive, Irmo, SC 29063

10/9/2022 10AM

Team Hope Walk- Maine
Ellsworth High School 24 Lejok Street, Ellsworth, ME 04605

10/8/2022 9:00 AM

Team Hope Walk- Liberty, MO
Liberty Community Center 1600 South Withers Road, Liberty, MO 64068

10/15/2022 10AM

Team Hope Walk- Orlando, FL
Cranes Roost County Park 274 Cranes Roost Blvd,, Altamonte Springs, FL 32701

10/15/2022

2022 Omaha Tailgate Party
Skyybox Bar & Grill 6720 S 168th St, Omaha, NE 68131

10/16/2022 1PM

Team Hope Walk- Southwest Michigan
Sherman Lake YMCA & Outdoor Center 6225 N. 39th Street, Augusta, MI 49012

10/16/2022 12:30PM

Team Hope Walk- Greater North Texas
Mary Heads Carter Park 2320 Heads Ln, Carrollton, TX 75006

10/17/2022 8am

8th Annual Golf for the Cure Tournament
Eagle Wath, 3055 Eagle Watch Dr, Woodstock, GA 30189

10/22/2022 10AM

Team Hope Walk- Tulsa, OK
LaFortune Partk, 5202 S. Hudson Ave, Tulsa, OK 74135

10/22/2022 6:00PM

8th Annual Freeze HD
Avalon Hollywood 1735 Vine St,, Los Angeles, CA 90028

10/22/2022 9:00AM

Team Hope Walk- San Diego
Coronada Tidelands Park, 2000 Mullinix Drive, Coronada, CA 92113

10/22/2022

Team Hope Walk- Philadelphia, PA
League Island Park The Navy Yard, Philadelphia, PA 19112

10/23/2022 9:00AM

Team Hope Walk- Hudson Valley, NY
Walkway Over The Hudson State Historic Park, 87 Haviland Rd, Highland, NY 126528

10/25/2022 8:00AM

2022 Nashville Hope for Huntington’s Golf Tournament
Hermitage Golf Course, 3939 Old Hickory Blvd, Old Hickory, TN 37138

11/1/2022 9AM

Team Hope Walk- Tucson, AZ
Reid Park 900 S Randolph Way, Tucson, AZ 85716

11/5/2022 9:00 AM

Team Hope Walk- Austin, TX
Martin Middle School, 1601 Haskell St, Austin, TX 78702

11/8/2022 12PM

Disability Chat: Disability Planning and JHD: An overview of the legal, financial, and educational options for children and young adults.
, NY

11/12/2022 6PM

2022 Indiana Chapter- Celebration of Hope
Half Liter BBQ 5301 Winthrop, Indianapolis, IN 46220

12/4/2022 1PM

2022 Chicago Celebration of Hope
The Ivy Room 12 East Ohio Street Suite 100, Chicago, IL 60611

12/3/2022 8AM

2022 Team Hope Walk- Tampa, FL
Lowry Park - Shelter 120, 7525 N Blvd, Tampa, FL 33604