Home - Action Kidney Cancer
Time 2022-09-08 10:44:58Web Name: Home - Action Kidney Cancer
WebSite: http://www.actionkidneycancer.org
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Action,Home,Cancer,KidneyDescription:
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Welcome to Action Kidney Cancer
The United Kingdom’s only patient-led kidney cancer charity
Newly diagnosed
Formerly known as Kidney Cancer Support Network
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Stronger together
In our own words
During this series of videos, kidney cancer patients and carers talk frankly about their experiences, emotions and how to live well with a diagnosis of kidney cancer
Coping with a diagnosis of kidney cancer
Talking about kidney cancer
A carer’s perspective
Real stories
The lives of all these people have been affected by kidney cancer
Some are patients, some are carers, all are stories by real people sharing their experiences of living with kidney cancer
Latest kidney cancer news
7 Sep 2022
Northern Soul fundraising event
Read More31 Aug 2022
Neutrophil-eosinophil ratio predicts response of kidney cancer to ipilimumab plus nivolumab
Read More30 Aug 2022
Consent forms for clinical trials are too long and complex for patients
Read More25 Aug 2022
Neoadjuvant axitinib may reduce venous tumour thrombus in kidney cancer
Read More24 Aug 2022
First bivalent COVID-19 booster vaccine approved by UK medicines regulator
Read More24 Aug 2022
COVID-19 and cancer: Immunotherapy and immunosuppressive cancer therapies
Read More23 Aug 2022
Efficacy of cabozantinib in metastatic MiT family translocation renal cell carcinoma
Read More23 Aug 2022
Weight loss with cabozantinib use in patients with metastatic kidney cancer
Read More23 Aug 2022
Role of stereotactic ablative body radiotherapy in kidney cancer
Read More23 Aug 2022
Delayed nephrectomy after immunotherapy for metastatic kidney cancer
Read More23 Aug 2022
Does the time to start first-line treatment influence survival of patients with low risk kidney cancer?
Read More23 Aug 2022
Reduced starting dose of TKI is comparable to a full dose in metastatic kidney cancer
Read MoreAction Kidney Cancer
Action Kidney Cancer C is for community mapIf you have not yet taken the time to join our community map, then please do so.
Using our community map allows you to identify other patients or carers who live nearby and reach out to them for support, friendship and companionship to bring our community together to support each other.
Your confidentiality will be maintained by the use of part of your postcode to flag a non-identifiable location on the map.
To find out more about the map and how to join, please follow the link below:
https://actionkidneycancer.org/help-support/community-map-3/
#kidneycancer #bypatientsforpatients #StrongerTogether 3 View on FacebookAction Kidney Cancer Please can you take the time to support this valuable research that will help patients.
The University of Glasgow has asked us to build awareness of the 'Patient reported outcomes study' by asking patients to complete this survey.
If you have a diagnosis of advanced kidney or liver cancer, we would like you to take part.
The survey is part of a larger project (the PROMs project) organised by the University of Glasgow and the European Oncology Nursing Society, and will help better understand the patient perspective of living with advanced kidney or liver cancer.
The survey will take you around 15-20 minutes to complete.
Please also note that you don’t have to take the whole survey at once. You can start and then click ‘Finish later’ at the bottom of your screen, and can come back to it when you have time.
Read more about the survey ob our website here: https://actionkidneycancer.org/research/patient-reported-outcome-measures-survey/Patient reported outcome measures (PROMs) survey Welcome This international survey aims to understand the experiences of people who live with advanced kidney cancer or advanced liver cancer. It is part of a larger project (the PROMs project) organised by the University of Glasgow and the European On... View on FacebookAction Kidney Cancer Neutrophils and eosinophils are white blood cells. In this study, 166 patients with kidney cancer that had spread to other organs and other parts of the body (metastatic kidney cancer) were treated with a combination of ipilimumab and nivolumab. The researchers were looking for a link between the ratio of neutrophils to eosinophils with patient outcomes.
Read more on our website here: https://actionkidneycancer.org/neutrophil-eosinophil-ratio-predicts-response-of-kidney-cancer-to-ipilimumab-plus-nivolumab/Neutrophils and eosinophils are white blood cells. In this study, 166 patients with kidney cancer that had spread to other organs and other parts of the body (metastatic kidney cancer) were treated with a combination of ipilimumab and nivolumab. The researchers View on FacebookAction Kidney Cancer A recent survey has shown that informed consent forms used for lung cancer trials are too long and complex for patients. The results of the first two parts of the survey are being presented at the 2022 World Conference on Lung Cancer.
The research suggests the layout of these forms can make it difficult for patients to find the information they need, and the forms could be improved by a patient-friendly section highlighting key points.
Read more on our website here: https://actionkidneycancer.org/consent-forms-for-clinical-trials-prove-too-long-and-complex-for-patients/A recent survey has shown that informed consent forms used for lung cancer trials are too long and complex for patients. The results of the first two parts of the survey are being presented at the 2022 World Conference on Lung Cancer. The research suggests the layout of these forms can make it diffi... View on FacebookAction Kidney Cancer In our series of videos 'In our own words' kidney cancer patients and carers talk frankly and openly about their experiences, emotions and how to live well with a diagnosis of kidney cancer.
Their insight can provide great support to those affected by kidney cancer.
Please take the time to watch the videos by following the link below:
https://actionkidneycancer.org/help-support/in-our-own-words/
#kidneycancer #bypatientsforpatients #StrongerTogether 2 View on FacebookAction Kidney Cancer In this study 20 patients with a kidney cancer tumour that had grown in the renal vein or the inferior vena cava (venous tumour thrombosis) were included in the study. They were given 8 weeks of treatment with axitinib with a break of one week before they had surgery to remove the tumour. More than 40% of patients had less complications during surgery than anticipated.
Read more on our website here: https://actionkidneycancer.org/neoadjuvant-axitinib-may-reduce-venous-tumour-thrombus-in-kidney-cancer/Neoadjuvant treatment is medication that is given before surgery to try to shrink the cancer, making it easier to remove. In this study 20 patients with a kidney cancer tumour that had grown in the renal vein or the inferior vena cava (venous tumour thrombosis) were included in the study. They were.... View on Facebook
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Action Kidney Cancer
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Manchester M1 3BN
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0800 121 8721
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About Action Kidney Cancer
We are the UK’s largest and most active patient-led kidney cancer charity. Whether you are a patient, survivor or someone you know has been diagnosed with kidney cancer, you have come to the right place to find support and information, and to be part of a caring and knowledgeable community of people: We are here to help you.
Registered charity in England, Wales (1164238), and Scotland (SC051330).
© Copyright Action Kidney Cancer 2021
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Mad Hatter’s Tea Parties will be taking place throughout the summer. Choose your date and have some fun!
To host a Mad Hatter’s Tea Party could not be easier; all you need is some sweet treats and a crazy hat and you are good to go!
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