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WebSite: http://www.worldduchenne.org

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World Duchenne Awareness Day 2022

Women and Duchenne

Join online event

Emergency in Ukraine

Donate for families affected by this conflict

Donate

Better care, better treatments, better lives

Global collective for the Duchenne & Becker voice

What we do

Consensus Guidelines for Adult Duchenne Care

Journal of Neuromuscular Diseases

Read publication

Stay updated

Curated DMD/BMD information from across the globe

Latest news

Standards of Care

Give the care they deserve

Check out the Family Guide

Scientific Directors Committee

Connecting research projects

Read more

What is Duchenne and Becker muscular dystrophy?

What do I need to do on a daily basis to help my child?

What can I do to raise awareness?

Welcome to WDO

We’ve been connecting the Duchenne and Becker muscular dystrophy community since 2005, but we’re more than this. Partner with WDO and you’ll automatically join the global family to improve treatment, quality of life and long-term outlook for all people affected by Duchenne and Becker muscular dystrophy.

The World Duchenne Organization is here to support you in every way imaginable: with information about the condition, where to go and what to do for care, research, clinical trials, and advocacy. By doing this, we hope to empower you or your organization to give people living with this condition the care they deserve. Because that’s what matters to all of us.

Participating in a clinical trial?

Read more information about joining a clinical trial

Joining a clinical trial

Latest News

NewsProject updatesResearch

International training for Duchenne patient advocates

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Women in Duchenne

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Duchenne Vietnam first WDO Aspiring Member

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Dr Imelda de Groot Award 2022 applications now open

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Relief Ukraine: Tool to trace Ukrainian patients’ needs of medicines

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WDO Aspiring Membership

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Monthly #apaperaday wrap-up: June 2022

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Monthly #apaperaday wrap-up: May 2022

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Monthly #apaperaday wrap-up: April 2022

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Make a donation

You will help the Duchenne & Becker community

Donate now

Family Guide

Implementing the updated standards of care

Download the Family Guide in your language

Event Calendar

Duchenne-Konferenz Schweiz

Wir lassen Fachpersonen, Betroffene, Eltern und Geschwister zu Wort kommen und freuen uns auf eine informative Konferenz mit Raum für Gespräche, Austausch und Vernetzung.

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More info?

Contact us

Drop us an email

Useful Links

ContactPrivacy & Cookie statementTerms & Conditions

News

Warning on stem cell therapy in Duchenne

03/11/2021

Adult Life & Duchenne

13/07/2021

ENMC workshop to refine recommendations for female carriers

25/08/2021

Newsletter

Subscribe to our newsletter and receive updates on developments in Duchenne & Becker, news and stories, curated by the WDO.

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