Canadian Hemophilia Society - Help Stop the Bleeding

Time 2020-09-15 10:03:32

Web Name: Canadian Hemophilia Society - Help Stop the Bleeding

WebSite: http://www.hemophilia.ca

ID:47368

Keywords:

Society,Hemophilia,Canadian,

Description:

Click on the image or below to access the charts featuring the coagulation products for all bleeding disorders.Recombinant factor VIIIFactor VIII von Willebrand factor (plasma-derived)Recombinant factor IXFactor IX (plasma-derived)Recombinant von Willebrand factorProducts for patients with inhibitorsProducts to treat rare factor deficienciesCLICK HERE to access theSubmission to the Canadian Agency for Drugs and Technologies in Health (CADTH)by the CHS on HemlibraClick here to access the submission to the Institut national d excellence en santé et en services sociaux in Quebec (in French)CLICK HEREto access the 2020 Canadian Integrated and Comprehensive Care Standards for Inherited Bleeding DisordersClick hereto access the self-assessment checklistClick below to know more.LEARN MORELEARN MORELEARN MOREPatient perspectives and economic consequences of frequent tenders for clotting factorsA team of Canadian hemophilia researchers are doing this study to learn more about the views, experiences, and economic impact related to frequent tender changes, among Canadian patients with hemophilia, or parents/ caregivers of someone with hemophilia.We do not knowthe impact of mandated product changes on Canadian patients and families, such as worries about the safety and effectiveness of the new product, extra clinic visits and bloodwork, extra costs from visits, and emotional distress from frequent treatment changes.The survey is anonymous. It will take around 15-20 minutes of your time to complete.LEARN MORE Hemophilia ProgramEastern Health, Janeway SiteRoom 2J755300 Prince Philip DriveSt. John s, Newfoundland A1B 3V6Clinic directorsDr. Lynette BowesDr. Paul MooreheadDr. Jacqueline CostelloDr. Natasha PardyNurse coordinatorJill MacDonaldOlga BolandColeen MooresTel: 709-777-4374Fax: 709-777-4292PhysiotherapistsColleen Jones DownPhysiotherapy DepartmentRoom 1J052Tel.: 709-777-4346Fax: 709-777-4499Social workerNatalie BensonRoom J4294Tel.: 709-777-4434Fax: 709-777-4796 The hemophilia treatment centres for patients living in Prince Edward Island are located inNova ScotiaandNew Brunswick.Clinic directorsDr. Sean DolanDr. Elizabeth ZedDr. Sarah GanderNurse coordinatorShauna GrayInherited Bleeding Disorder ClinicSaint John Regional Hospital400 University Avenue, PO Box 2100Saint John, New Brunswick E2L 4L2Tel.: 506-648-7286Fax: 506-648-7379PhysiotherapistAlison RobichaudPhysiotherapy DepartmentSaint John Regional Hospital400 University Avenue, PO Box 2100Saint John, New Brunswick E2L 4L2Tel.: 506-648-6912Fax: 506-648-6913 The hemophilia treatment centres for patients living in Prince Edward Island are located inNova ScotiaandNew Brunswick.Clinic directorsDr. Ismail A SharifDr. Nizar Abdel-SamadNurse coordinatorsStephanie DaigleJulie CormierHemophilia ClinicRHA-B, The Moncton Hospital135 MacBeath AvenueMoncton,New Brunswick E1C 6Z8Tel.: 506-857-5465 (nurses station)Emergencies: 1-888-475-9922Pager: 506-558-7158Fax: 506-857-5464PhysiotherapistTammy BettsPhysiotherapy DepartmentTel.: 506-857-5326Fax: 506-857-5477Social workerMelanie DoironRoom 6503Tel.: 506-860-2341Fax: 506-857-5775 The hemophilia treatment centres for patients living in Prince Edward Island are located inNova ScotiaandNew Brunswick.Clinic directorsDr. Sue RobinsonDr. Mary-Margaret KeatingNurse coordinatorsSue Van OostenLisa GrayHereditary Bleeding Disorders ProgramQueen Elizabethll Health Sciences CentreVictoria Building, Room 40201276 South Park StreetHalifax, Nova Scotia B3H 2Y9Tel.: 902-473-5612Pager: 902-473-2220# 2226Fax: 902-473-7596PhysiotherapistGail BellussiNova Scotia Rehabilitation Centre3rd Floor Physiotherapy1340 Summer StreetHalifax, Nova Scotia B3H 2E1Tel: 902-473-1288Fax: 902-473-3398Social workerJanice SpencerSocial Work DepartmentQueen Elizabeth II Health Sciences CentreVG Site1276 South Park StreetHalifax, Nova Scotia B3H 2Y9Tel.: 902-473-4072Pager: 902-458-6106Fax: 902-473-4429Factor Product Utilization AssistantChris CurtisTel: 902-411-0045 (Both IWK and QEII)Fax: 902-473-6260 The hemophilia treatment centres for patients living in Prince Edward Island are located inNova ScotiaandNew Brunswick.Clinic directorsDr. Victoria PriceDr. Ketan P. KulkarniNurse coordinatorElla ReidPediatric Bleeding Disorder ClinicIWK Health Centre6th Floor AmbulatoryChildren s Site5850/5980 University AvenuePO Box 9700Halifax, Nova Scotia B3K 6R8Tel.: 902-470-6910Tel.: 902-470-8752Toll-free: 1-888-470-5888Fax: 902-470-7208PhysiotherapistAllison ReidPhysiotherapy DepartmentTel.: 902-470-8025Tel.: 902-470-7316Fax: 902 470-8178Social WorkerDoug CampbellPediatric Social Work Office2nd Floor Children’s BuildingTel.: 902-470-8167Fax: 902-470-7211Factor Product Utilization AssistantChris CurtisTel: 902-411-0045 (Both IWK and QEII)Fax: 902-470-7208 Inherited Bleeding Disorder ClinicSaint John Regional Hospital400 University Avenue, PO Box 2100Saint John, New Brunswick E2L 4L2Clinic directorsDr. Sean DolanDr. Elizabeth ZedDr. Sarah GanderNurse coordinatorShauna GrayTel.: 506-648-7286Pager: 506-646-3757Fax: 506-648-7379PhysiotherapistAlison RobichaudPhysiotherapy DepartmentTel.: 506-648-6912Fax: 506-648-6913 Hemophilia ClinicHorizon Health Network, Zone 1, Moncton135 MacBeath AvenueMoncton,New Brunswick E1C 6Z8Clinic directorDr. Ismail A SharifDr. Nizar Abdel-SamadNurse coordinatorStephanie DaigleTel.: 506-857-5465Tel.: 506-857-5467Tel.: 1-888-475-9922 (emergency)Fax: 506-857-5464PhysiotherapistTammy BettsPhysiotherapy DepartmentTel.: 506-857-5326Fax: 506-857-5477Social workerMelanie DoironTel.: 506-860-2341Fax: 506-857-5775 Clinique d hémophilieCHUS Hôpital Fleurimont3001 12eAvenue Nord,7C Hemato-Onco, Clinique HémophilieSherbrooke, Quebec J1H 5N4Hemophilia ClinicClinic directorsDr. Jean-Francois Castilloux, hematologistDr. Josée Brossard, pediatric-hematologistNurse coordinatorMarie-Hélène ThompsonTel. : 819-346-1110 ext. 14561Pager: 819-346-1110, dial 0, # 3771Fax : 819-348-3855Fax: 819-564-5434 (hematology)PhysiotherapistChristine BeaulieuTel.: 819-346-1110, 13537Pager:819-346-1110, dial 0, # 7327 Centre de l hémophilie de l est du QuébecCHA Hôpital de l Enfant-Jésus1401 18e Rue , Room J-S067, Door DQuebec, Quebec  G1J 1Z4Clinic directorsDr. Christine DemersDr. Stéphanie CloutierNurse coordinatorHélène NéronTel.: 418-649-5624Fax: 418-649-5996Pager: 418-641-3479PhysiotherapistsCatherine van NesteJulie DionneOlivier LeblancTel.: 418-649-5751Fax: 418-649-5879 Service d hémostase congénitaleMontreal Children s Hospital1001 Décarie BlvdRoom B RC 2238Montreal, Quebec  H4A 3J1Tel.: 514-412-4420Fax: 514-412-4424Clinic directorsDr. Margaret WarnerDr. Catherine VezinaDr. Christine A. SabapathyNurse coordinatorTania LaflechePhysiotherapistMarion HahnSocial workerCamila GundelTel.: 514-412-4400 ext 22089 Centred hémostase, 1stFloor, Ward 12Pavillon Lucie et André Chagnon du Centre de cancérologie Charles-BruneauCHU Sainte-Justine3175 chemin de la Côte-Sainte-CatherineMontreal, Quebec H3T 1C5Clinic directorsDr. Georges-Étienne RivardDr. Jean St-LouisDr. Rochelle WinikoffNurse coordinatorsClaudine AmesseSabrina PelletierNancy CatalfamoTel.: 514-345-4931 ext. 6031 (Claudine)Pager: 514-415-5573 (Claudine)Emergency: 514-345-2360Fax: 514-345-7749Claude MeilleurQuebec Reference Centre for the Treatment of Patients with InhibitorsPavillon Lucie et André Chagnon du Centre de cancérologie Charles-BruneauCHU Sainte-Justine3175 chemin de la Côte-Sainte-CatherineMontreal, Quebec H3T 1C5Tel: 514-345-4931 ext. 5760Tel: 514-345-2360 (pager)Fax: 514-345-7749PhysiotherapistJosie PilonPhysiotherapy DepartmentTel.: 514-345-4607Tel.: 514-345-4931 ext. 7055Fax: 514-345-4746 MDU Hematology ClinicCHEO401 Smyth Road, 2nd FloorOttawa, OntarioK1H 8L1Clinic directorsDr. Robert KlaassenDr. Ali AmidNurse coordinatorHeather PerkinsTel.: 613-737-7600 ext. 2368Pager: 613-239-5698Fax: 613-738-4846PhysiotherapistBrenda ElliottTel.: 613-737-7600, ext. 2859Fax: 613-738-4839Social workersCamelia LaricciaKrisann DennisTel.: 613-737-7600, ext. 2364Fax: 613-738-4839 Ottawa Regional Adult Bleeding Disorders ProgramThe Ottawa Hospital, General Campus501 Smyth Road, Box 248Ottawa, Ontario K1H 8L6Clinic directorsDr. Alan TinmouthDr. Elianna Saidenberg (Assistant)Nurse coordinatorLucie LacasseTel.: 613-737-8252Fax: 613-737-8157Anne-Marie Clement (back-up)PhysiotherapistSimon BougiePhysiotherapyThe Ottawa Hospital, Riverside Campus1967 Riverside Drive, Box 28Ottawa, Ontario K1H 7W9Tel.: 613-738-8208Fax: 613 738-8431 South Eastern Ontario Regional Inherited Bleeding Disorders ProgramDouglas 3, Room 8-312Kingston General Hospital76 Stuart StreetKingston, Ontario K7L 2V7Clinic directorsDr. Paula JamesDr. David LillicrapDr. Mariana SilvaNurse coordinatorsLisa ThibeaultMegan ChaigneauTel.: 613-549-6666ext. 6999Pager : 613-536-7570Fax: 613-548-2435PhysiotherapistKatie PerriTel.: 613-549-6666 ext. 4683Social workerHeidi Schmidt, MSW, RSWVictory 1-3-224ATel.: 613-549-6666 ext. 4969Fax: 613-548-2409Hematology/Oncology ClinicHospital for Sick Children555 University AvenueToronto, Ontario M5G 1X8Clinic directorsDr. Victor BlanchetteDr. Manuel CarcaoDr. Walter KahrDr. Leonardo BrandaoNurse coordinatorsVanessa BouskillCindy WakefieldTel.: 416-813-5871Pager: 416-377-9716Fax: 416-813-7701PhysiotherapistsDeirdre TetzlaffDepartment of Rehabilitation Services, Room S229Tel.: 416-813-6755, ext. 71Fax: 416-813-8557Social workerDiana CottinghamSears Cancer ClinicTel.: 416-813-6798Fax: 416-813-6746Room 4-169 Cardinal Carter NorthSt. Michael s Hospital30 Bond StreetToronto, Ontario M5B 1W8Clinic DirectorsDr. Michelle SholzbergDr. Jerome TeitelNurse coordinatorsMcKenzie QuevillonGrace WozniakTel.: 416-864-5129Pager: 416-685-9404Fax: 416-864-5310PhysiotherapistsLaurence Boma-FischerTel.: 416-864-6060, ext. 2182Fax: 416-864-5310Social workerJordan LewisSpecialized Complex CareTel.: 416-864-6060 ext. 2741Fax: 416-864-5310 Sudburyand North-Eastern Ontario Hemophilia ProgramHealth Sciences NorthSudbury Outpatient Centre865 Regent Street S., 4th floorSudbury, Ontario P3E 3Y9Clinic directorDr. Kulwant GillNurse coordinatorElizabeth (Betty Ann) ParadisTammy BourqueTel.: 705-523-7148Fax: 705-523-7077PhysiotherapistsNicole GrahamMary Sabo, (backup)Renee WilsonChildren s Treatment Centre41 Ramsey Lake RoadSudbury, Ontario P3E 5J1Tel.: 705-523-7337 ext. 1461Fax: 705-560-4273Social workerLinda Mansfield SmithTel.: 705-523-7148Fax: 705-523-7077 Hemophilia ProgramThunder Bay Regional Health Sciences Centre3rd Floor Regional Cancer Care980 Oliver RoadThunder Bay, Ontario P7B 6V4Clinic directorDr. Nicole LaferriereDr. Joel WarkentinNurse coordinatorsLori HygaardSusie OstrowskiNicole ZuefleTel.: 807-684-7251Tel.: 807-684-7200Fax: 807-684-5807Social workerStephanie AdamsTel.: 807-683-6391PhysiotherapistAngelo MelchiorreThunder Bay Regional Health Science Centre980 Oliver RoadThunder Bay, Ontario P7B 6V4Tel.: 807-684-6270Fax: 807-684-5835 Bleeding Disorders ProgramLondon Health Sciences CentreVictoria Hospital, Room B1-301800 Commissioners Road EastLondon, Ontario N6A 5W9Clinic directorsDr. Chai PhuaDr. Lawrence JardineSecretaryJenifer McCallumNurse coordinatorLori LaudenbachTel.: 519-685-8500 ext. 53582Pager: 519-685-8500 ext. 15358Fax: 519-685-8543PhysiotherapistMary Jane SteeleJanet CormierSouthwestern Ontario Bleeding Disorders ProgramThames Valley Children’s Centre779 Base Line Road EastLondon, Ontario N6C 5Y6Tel: 519-685-8700 ext. 50145 (Mary Jane) / ext 52864 (Janet)Fax: 519-685-8699Social workersCindy Milne WrenLondon Health Sciences Centre800 Commissioners Road EastP.O. Box 5010London, Ontario N6A 5W9Tel.: 519-685-8500 ext. 52072Pager: 519-685-8500 # 14664Fax: 519-685-8817Stefan BranovLondon Health Sciences Centre800 Commissioners Road EastP.O. Box 5010London, Ontario N6A 5W9Tel.: 519-685-8500 ext. 75392Pager: 519-685-8500 # 15392Fax: 519-685-8424 Hemophilia / Pediatric Thrombosis ProgramHamilton Health Sciences CorporationMcMaster Division, 3F ClinicClinic directorsDr. A.K. ChanDr. Irwin WalkerDr. Alfonso IorioNurse coordinatorsKay DeckerRebecca GoldsmithTel.: 905-521-2100 ext. 75978 (Kay) / ext. 75970 (Rebecca)Pager: 905-521-5030 page 4444 (Kay) / page 4445 (Rebecca)Toll-free: 1-866-903-4642Fax: 905-577-8478PhysiotherapistsKaren StrikeLisa Scott,(backup)Dianne Vandepas(backup)McMaster Division, 1C26ATel.: 905-521-2100 ext 76559 (Karen) / ext 76977 (Lisa)Fax:905-575-8478Social workerLinda WaterhouseMcMaster Division, 3F ClinicTel.: 905-521-2100 ext. 76161Fax: 905-521-2654 (call first) Bleeding Disorders ProgramHealth Sciences CentreClinic directorsDr. Jayson StoffmanDr. Donald HoustonDr. Sara IsraelsDr. Emily RimmerDr. Leonard MinukNursesTracy-Anne NacionalesKristen CsupakTel.: 204-787-2465Pager: 204-787-2071 # 3346Fax: 204-787-1743PhysiotherapistsMatthew ThiessenNatalie RuestPhysiotherapy-Child HealthCH246 840 Sherbrook StreetWinnipeg, Manitoba R3A 1S1Tel.: 204-787-2641Fax: 204-787-1965Greig BlameyBlake Richison,(backup)800 Sherbrook Street, Room RR140EWinnipeg, Manitoba R3A 1R9Tel.: 204-787-2922 (Greig)Tel: 204-787-1965 (Blake)Fax: 204-787-4960Social workerPatty Phrakonkham-Ali810 Sherbrook Street, MS107Winnipeg, Manitoba R3A 1R8Tel.: 204-794-8133Fax: 204-787-1538Dr. Kelsey Brose – medical director, hematologistDr. Oksana Prokopchuk-GaukDr. David StammersDr. Roona SinhaNurse coordinatorsNancy HodgsonTara SchlosserRachel McLeodRaylene GabrielTel.: 306-655-6504 (main office)Tel.: 306-381-4185 (nurses office)Fax: 306-655-6426PhysiotherapistsJoAnn NilsonAndrea WillenborgTel.: 306-655-6628 or 306-655-2431Fax: 306-655-6426 or 306-655-2994Social workerJennifer KingTel.: 306-655-6503Fax: 306-655-6424 Dr. John Akabutu Comprehensice Centre for Bleeding Disorders Pediatric DivisionStollery Children s Hospital Dr. John Akabutu Comprehensive Centre for BleedingDisorders Adult Division3D Medicine ClinicKaye Edmonton ClinicClinic directorDr. Bruce RitchieDr. Lauren BolsterDr. Linda SunNurse coordinatorHilary DarringtonTelephone: 780-407-6588Fax: 780-407-2605After hours contact number780-407-8822Ask to page Dr. Bruce Ritchie or the adult hematologist on callSocial workerTelephone: 780-407-5387PhysiotherapistErin McCabeJason Waddell (backup)Product OrdersEmily MoenTelephone: 780-407-7637 Southern Alberta Pediatric Bleeding Disorder ProgramAlberta Children’s HospitalClinic directorDr. Doan LeDr. MacGregor SteeleNurse coordinatorsNikki GuilcherAngela RuzyckiT: 403-955-7311, T: 403-955-7211 (after hours)P: 403-212-8223 # 1910Fax: 403-955-7393PhysiotherapistJulia BrooksT: 403-955-2994, Fax: 403-955-7501Social workerT: 403-955-2557, Fax: 403-955-7799 Southern Alberta Rare Blood and Bleeding DisordersComprehensive Care Program Adult DivisionFoothills Medical CentreUnit 57B Special Services BuildingClinic directorsDr. Man-Chiu PoonDr. Dawn GoodyearDr. Adrienne LeeDr. Natalia RydzNurse coordinatorsCarol Spitzer,Trudy SaleandJulia Hews-GirardT: 403-944-4057, P: 403-212-8223 # 7015Fax: 403-944-3220Social workerLezley IrelandT: 403-944-4483Fax: 403-944-1446PhysiotherapistsSteve AnthonyAmanda ZahariukClinical psychologistDr. Andrea NelsonT: 403-944-5412Fax: 403-944-2299 Adult Bleeding Disorder Program of BCPhone: 604-806-8855 Fax: 604-806-8784Toll Free: 1-877-806-8855Clinic directorsDr. Shannon JacksonDr. Paul R. YensonNurse practitionersMichelle BechKaren SimsPhysiotherapistStacey CaveSocial workerMirelle LeClaireClaude Bartholomew(Research)Burrard Building, Room 491ANurse practitionersErica CrillyCelina WooTel.: 604-875-2345 ext. 5334Fax: 604-875-2533PhysiotherapistLawren De MarchiKayla Hildebrand(back-up)Physiotherapy DepartmentTel.: 604-875-2123Fax: 604-875-3220Social workerSocial Work Office, Room B4Tel.: 604-875-2345Fax: 604-875-2012

TAGS:Society Hemophilia Canadian 

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