FIRST - Foundation for Ichthyosis & Related Skin Types, Inc.

Time 2020-09-14 22:05:47

Web Name: FIRST - Foundation for Ichthyosis & Related Skin Types, Inc.

WebSite: http://www.firstskinfoundation.org

ID:46739

Keywords:

for,Ichthyosis,FIRST,

Description:

Are you a New Parent? Learn to Care for Your Child with Ichthyosis Find out MoreDiscover all the benefits of connecting with the Foundation for Ichthyosis and Related Skin Types (FIRST). Listen to what affected families, individual patients, and the medical community have to say about being a part of FIRST and taking advantage of FIRST s resources, like research grants, educational materials, and special patient-centric meetings and conferences. Learn why FIRST is the global leader in advocacy for ichthyosis and related skin types.Our mission is to improve lives and seek cures for those affected by ichthyosis and related skin types. Find out More Now is the time to GET DIAGNOSED and join FIRST in playing an important role in ichthyosis research. FIRST is co-sponsoring a transformational scientific endeavor with one of the world's leading institutions in ichthyosis research, Yale University. We encourage you to take part. The National Registry for Ichthyosis & Related Skin Disorders, "The Registry," is available to investigators worldwide, and is the largest resource of ichthyosis patient information - critical data that holds the key to better, more targeted treatments, and eventual cures. The Registry, co-sponsored by FIRST is the next evolution of ichthyosis research.

TAGS:for Ichthyosis FIRST 

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FIRST was established to help individuals and families affected by ichthyosis. Services provided by FIRST include biennial national conferences, regional meetings, a support network, publications, advocacy, and a research program.

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