Crohn's Xplained

Web Name: Crohn's Xplained

WebSite: http://www.crohnsxplained.com

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Crohn’s Xplained StoryCrohn's Historia Explicada BookmarksFavoritosMedicine X StoryMedicine X Historia Meet ZachConoce a ZackCrohn’s XpertsExpertos en Crohn'sMeet the CreatorsConoce a los CreativosStory Reviewed ByLa historia ha sido revisada por: SubscribeSuscribete <?xml version="1.0" encoding="utf-8"?> Share on Twitter<?xml version="1.0" encoding="utf-8"?> Share on Facebook<?xml version="1.0" encoding="utf-8"?> Share on LinkedIn<?xml version="1.0" encoding="utf-8"?> Share via Email Skip to content

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Crohn's Xplained

Through storytellingMediante una historia

English Español

BookmarksFavoritos

Want to jump back to different topics in the story? No problem – just check out these bookmarks.

¿Quieres volver a diferentes topicos en la historia? No hay problema - solo mira estos favoritos.

What is Crohn’s disease?Que es la enfermedad de Crohn's SymptomsSíntomas TriggersDisparadores SupportSoporte

Medicine X StoryMedicine X Historia

Working as a medical doctor, I realized that far too many patients are confused about their diagnoses, their conditions, and their treatments. There’s a disconnect between the language that doctors use and what everyday people understand. This can make you feel incredibly hopeless and anxious at an often very difficult time in your life.

We believe there is a better way. We believe all patients – regardless of age, gender, culture or condition – should have access to medical information they can understand! Everyone should feel informed and empowered in order to engage with their doctors and be involved in making medical decisions.

This is why Medicine X was created.

Trabajando como doctor, me he dado cuenta de que demasiados pacientes estan confundidos con sus diagnosis, sus afecciones, y sus tratamientos. Hay una desconexion entre el lenguaje que los doctores usan y el que la gente común entiende. Esto puede hacerte sentir increiblemente desauciado y ansioso en momentos usualmente muy dificiles en tu vida.

Nosotros creemos que hay una mejor manera. ¡Creemos que todos los pacientes, sin importar la edad, el genero, cultura o afección, deberían tener acceso a información médica que puedan entender! Todos deberían sentirse informados y empoderados para involucrarse con sus doctores en tomar decisiones médicas.

Por eso es que MedicineX fue creado

Dr. Kim Chilman-Blair
Founder, Medicine X

Dr. Kim Chilman - Blair
Fundadora, MedicineX

About Crohn's XplainedSobre Crohn's Xplained

Real People

The Crohn’s Xplained story is based on a real person – Zach! It reflects his story, his experiences, and his advice to others. There have also been lots of people who contributed along the way with their stories and advice. Thanks to everyone who helped create Crohn’s Xplained!

Our Team

The Medicine X team are doctors, artists, and creative writers who all work to make sure of one thing — the information is easy to understand. No more medical jargon! Everything is correct and up-to-date!

Experts

Each of our stories has a lineup of rockstar-like experts behind it to make sure the story is spot-on in terms of medical information. We’ve got a pretty great panel in the field of Crohn’s disease.

Gente Real

La historia eXplicada de Crohn's esta basada en una persona real. Zack. Refleja su historia, sus experiencias y su consejo para otros. Tambien ha habido mucha gente que contribuyó a lo largo con sus historias y consejos. ¡Gracias a todos los que ayudaron a crear Crohn's Xplicado!

Equipo

El equipo de MedicineX son doctores, artistas, creativos, y escritoresque trabajan para asegurarse de una cosa: que la información sea fácil de entender. ¡No mas jerga médica! ¡Todo es correcto y actualizado!

Expertos

Cada una de nuestras historias cuenta detrás con un equipo de expertos estrella, para asegurar que la historia sea exacta en cuanto a información médica. Tenemos un muy buen plantel de expertos en el campo de Crohn's.

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Meet ZachConoce a Zack

Hey, I’m Zach! You guessed it… I’ve got Crohn’s disease. It’s been quite the rollercoaster figuring out Crohn’s. I was first diagnosed when I was quite young, but I always found it pretty difficult to understand. Over the years, I’ve learned so much more about it, and how it can affect your whole life. My advice to anyone out there would be to be  open about your disease, there’s no reason to be ashamed. Be optimistic. Keep busy, push yourself. Half the battle is getting out of bed. I hope my story with Medicine X can help you! Want to hear more from me? Watch to hear a bit more about my story.

¡Ey! ¡Soy Zack! Lo has adivinado, tengo la enfermedad de Crohn's. ¡Ha sido una verdadera montaña rusa descifrar Crohn's. A mi me diagnosticaron cuando era bastante joven, pero siempre me reulstó dificil de entender. A lo largo de los años aprendi mucho mas al respecto, y como puede afectar toda tu vida. Mi consejo para cualquiera ahi afuera es ser abierto con respecto a la enfermedad, no hay razón para avergonzarse. Sea optimista. Manténgase ocupado, empújate. La mitad de la batalla es salir de la cama. ¡Espero que mi historia con Medicine X pueda ayudarte! ¿Quieres escucharmas? Ve esto para escuchar más un poco más sobre mi historia.

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We’d Love to Hear Your Thoughts About Crohn’s XplainedNos encantaría escuchar que piensas dobre Crohn's eXplicado.

Share your thoughts hereComparte tus ideas aquí.

Crohn’s XpertsExpertos en Crohn's

Check out our experts that have been involved with Crohn’s Xplained!

Chequea nuestros expertos que han estado involucrados con Crohn's eXplicado!

Photo of Dr Bruce SandsDr Bruce Sands

Dr Bruce SandsDr Bruce SandsMD, MSMD, MS

Icahn School of Medicine at Mount Sinai, New YorkESCUELA DE MEDICINA ICAHN EN MOUNT SINAI, NUEVA YORK

Read moreLeer mas

Photo of Dr Corey A. SiegelDr Corey A. Siegel

Dr Corey A. SiegelDr Corey A. SiegelMD, MSMD, MS

Dartmouth-Hitchcock Medical Center, New HampshireCENTRO MEDICO DARMOUTH-HITCHCOCK, NEW HAMPSHIRE

Read moreLeer mas

Photo of Dr Sarah StreettDr Sarah Streett

Dr Sarah StreettDr Sarah StreettMD, AGAFMD, AGAF

Clinical Director of Inflammatory Bowel Disease, StanfordDIRECTORA CLINICA DE ENFERMEDAD DE COLON INFLAMABLE DE STANDFORD.

Read moreLeer mas

Have a question? Contact us¿Tienes una pregunta? Contactanos <?xml version="1.0" encoding="utf-8"?> Share on Twitter<?xml version="1.0" encoding="utf-8"?> Share on Facebook<?xml version="1.0" encoding="utf-8"?> Share on LinkedIn<?xml version="1.0" encoding="utf-8"?> Share via Email

Interested in Learning About Clinical Trials? ¿Te interesa aprender mas sobre los Ensayos Clínicos?

Meet the CreatorsConoce a los Creativos

Meet the artist and story writer behind Crohn’s Xplained!

¡Conoce al artista y escritor detras de Crohn's eXplicado!

The artistEl artista

Marie GosselinMarie Gosselin

Marie is from Normandie, France. She grew up in a bakery in a small village surrounded by nature and croissants. She moved to Belgium to study illustration and graphic design at Saint Luc in Tournai where she fell in love with pencils, paint, and fries.

After five years abroad she went back to France to study motion graphics at Gobelins in Paris and start her freelance activity. For years she created pictures and animations back in Normandie under her cat’s supervision but decided it was time to explore new horizons so six months ago Marie moved to Melbourne, Australia.

"I got in touch with Medicine X to draw illustrations about patients’ stories. The subject itself was very new to me – I was more used to trees and tigers. Then I realized it was not about making medical illustrations but giving a voice to people going through conditions we might not be aware of. This way, I contribute to help people understanding the disease in a stressless and pedagogical manner."

Marie es de Normandía en Francia. Creció en una repostería en un pequeño pueblo rodeada por medialunas y la naturaleza. Se mudó a Bélgica para estudiar dibujo y diseño gráfico en Saint Luc en Tournai donde se enamoró de los lápices, la pintura y las patatas fritas.

Despues de 5 años fuera volvió a Francia para estudiar gráficos móviles en Gobelins en Paris y comenzar su actividad free-lance. Durante años creo imagenes y animacion en Normandia bajo la supervisación de su gato, pero decidió que era hora de explorar nuevos horizontes, asi que hace seis meses Marie se mudó a Melbourne, Australia.

"Me conecte con MedicineX para dibujar ilustraciones de las historias de los pacientes. El tema era muy nuevo para mi, yo estaba mas acostumbrada a dibujar árboes y tigres. Luego me di cuenta de que no se trataba de hacer ilustraciones médicas pero de dar una voz a la gente tiene condiciones que yo no conocía. De esta manera, contribuyo ayudando a la gente a entender la enfermedad sin estrés y de una manera pedagógica".

The writerEl escritor

Brandon ColemanBrandon Coleman

I've been working as a writer in the entertainment industry for over 15 years. When I heard about what Medicine X was doing with entertainment to educate and help people, I knew I had to be a part of it. Sometimes it's really difficult for people to understand or find help when they get a really difficult diagnosis. It can be shocking and life altering. Medicine X gives people a chance to take control and know their options which is really just giving people hope. The fact that I’m a part of that is an honour. At the end of the day, I just want to make people smile and know I did something to make their life a little bit better.

He estado escribiendo para la industria del entretenimiento por mas de 15 años. Cuando escuché lo que MedicineX estaba haciendo con entretenimiento para educar a la gente, supe que tenía que ser parte de ello. A veces es realmente difícil para la gente entender o encontrar ayuda cuando reciben un diagnóstico difícil. Puede ser impactante y alterar tu vida. MedicineX le da a la gente una oportunidad de tomar control y conocer sus opciones que verdaderamente le esta dando esperanza a la gente. El hecho de que soy parte de eso me honra. Al final del día, yo solo quiero hacer sonreir a la gente y se que hice algo para mejorar un poco sus vidas.

Story Reviewed ByLa historia ha sido revisada por:

The Crohn's & Colitis Foundation is the largest non-profit, voluntary, health organization dedicated to finding cures for inflammatory bowel diseases (IBD). The Foundation’s mission is to cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults who are affected by these diseases. The Foundation works to fulfill its mission by funding research; providing educational resources for patients and their families, medical professionals, and the public; and furnishing supportive services for those afflicted with IBD. For more information call 888-694-8872 or email info@crohnscolitisfoundation.org.

La Fundación de Crohn's y Colitis es la organización sin fines de lucro voluntaria mas importante dedicada a encontrar curas para la enfermedad de colon inflamatorio (IBD) La misión de la Fundaciónes curar la enfermedad de Crohn's y la colitis ulcersosa, y mejorar la calidad de vida de niños y adultos que se ven afectados por estas enfermedades. La Fundación trabaja para lograr este objetivo financiando investigación, proporcionando recursos educativos para pacientes y sus familias, profesionales médicos, y el publico; y equipando con servicios de apoyo para aquellos afectados por IBD. Para mas información llamar a: 888-694-8872 o mandar un email a info@crohnscolitisfoundation.org

crohnscolitisfoundation.org

The information provided by Medicine X is of a general nature and is not meant to be exhaustive or apply to your specific medical needs. Information shouldn’t substitute or overrule the advice, diagnosis, or treatment suggested by your doctor. Never disregard professional medical advice or delay in seeking it because of something you have read on Medicine X Websites, Apps, Email communications or in our Communities. If you think you may have a medical emergency, call your doctor or emergency services immediately!

If you are engaging with Medicine X please note that you’re agreeing to our Terms and Conditions and our Privacy and Data Policy.

La informacion proporcionada por Medicine X es de caracter general y no es exhaustiva ni esta supuesta a ser aplicada a sus necesidades medicas específicas. Ninguna información debería sustituir o anular el consejo, diagnosis o tratamiento sugerido por un doctor. Nunca desatienda el consejo medico profesional o lo retrase por algo que leyo en el website, las aplicaciones, los emails o las comunidades de MedicineX. Si usted cree que puede llegar a tener una emergencia médica, llame a su doctor o al servicio de emergencia inmediatemente.

Si usted se involucra con MedicineX por favor advierta que está acordando con nuestros Términos y Condiciones y nuestra Política de Privacidad y de Datos.

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Dr Bruce SandsDr Bruce SandsMD, MSMD, MS

Icahn School of Medicine at Mount Sinai, New YorkESCUELA DE MEDICINA ICAHN EN MOUNT SINAI, NUEVA YORK

Dr. Sands is an expert in the world of IBD. In fact, he was awarded the Crohn’s and Colitis Foundation of America’s New England Chapter’s ‘Humanitarian of the Year’ award in 2006 and the CCFA’s national ‘Lifetime Achievement Award’ in 2016 for his dedication to IBD. For his entire professional career, Dr. Sands has been looking after people suffering from IBD, and has been the main investigator on a number of groundbreaking studies for the treatment of IBD. He has also published over 150 peer-reviewed articles so he knows what he’s talking about.

Dr. Sands previously served as the Chair of the CCFA’s Clinical Research Alliance, and on the National Scientific Advisory Committee. He is a past chair of the International Organization for the Study of Inflammatory Bowel Disease (IOIBD) and has also served as the Chair of the Immunology, Microbiology and Inflammatory Bowel Disease Section of the American Gastroenterological Association. Dr. Sands has been an Associate Editor for the journal Gastroenterology, and is on the Editorial Board of Inflammatory Bowel Diseases.

El Dr. Sands es un experto en el mundo de IBD. De hecho, recibio el galardon por el "Humanista del Año" por la Fundación de Crohn's y Colitis de America de New England en 2006 y el Premio Nacional a la Trayectoria por la CCFA en el 2016 por su dedicación al IBD. Durante toda su carrera, el Dr Sands ha estado cuidando gente que sufre de IBD y ha sido el investigador prinicpal en un numero de estudios innovadores para el tratamiento de IBD. Tambien publicó mas de 150 articulos revisados por sus pares, asi que sabe de lo que esta habalndo.

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Dr Corey A. SiegelDr Corey A. SiegelMD, MSMD, MS

Dartmouth-Hitchcock Medical Center, New HampshireCENTRO MEDICO DARMOUTH-HITCHCOCK, NEW HAMPSHIRE

Another incredible expert in Crohn’s Disease is Dr Corey Siegel. He’s the Section Chief of Gastroenterology and Hepatology and the Co-Director of the Inflammatory Bowel Disease (IBD) Center at the Dartmouth-Hitchcock Medical Center in New Hampshire, so he knows his stuff. He has lectured nationally and internationally, and published numerous journal articles and book chapters on IBD.

Dr. Siegel has spent a lot of his time developing tools to better the care of people with IBD. He also started the BRIDGe group – an international research group of IBD investigators looking at how to help people with IBD. He has served as the co-chair of the Crohn’s and Colitis Foundation Professional Education Committee, and is currently the co-chair of the Crohn’s and Colitis Foundation Quality of Care Program. So, with all that to his name, it’s no wonder Dr Siegel is famous in the world of IBD.

¡Ey! ¡Soy Zack! Lo jas adivinado, tengo la enfermedad de Crohn's. ¡Ha sido una verdadera montaña rusa descifrar Crohn's. A mi me diagnosticaron cuando era bastante joven, pero siempre me resulto dificil de entender. A lo largo de los años aprendi mucho mas al respecto, y como puede afectar toda tu vida. Mi consejo para cualquiera ahi afuera es ser abierto con respecto a la enfermedad, no hay razón para avergonzarse. Sea optimista. Mantengase ocupado, empujate. La mitad de la batalla es salir de la cama. ¡Espero que mi historia con Medicine pueda ayudarte! ¿Quieres escucharmas? Ve esto para escuchar un poco mas sobre mi historia.

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Dr Sarah StreettDr Sarah StreettMD, AGAFMD, AGAF

Clinical Director of Inflammatory Bowel Disease, StanfordDIRECTORA CLINICA DE ENFERMEDAD DE COLON INFLAMABLE DE STANDFORD.

Our next reviewer is Dr. Sarah Streett, who is the Clinical Director of Inflammatory Bowel Disease at Stanford. But it doesn’t stop there… Dr. Streett is a member of the Crohn’s and Colitis Medical Advisory Board. She has several leadership roles within the American Gastroenterological Association (AGA), has served as a special government employee at the FDA, and represented the interests of gastroenterologists and their patients on Capitol Hill. Dr. Streett was recently recognized by the local Crohn’s and Colitis Foundation as a 2018 “Champion of Hope” for the impact she has had in the lives of people with Crohn's disease & ulcerative colitis.

Dr Street has focussed her career on treating people with IBD, and is now linking people with multi-disciplinary care and helping people find an opportunity to be involved in clinical research. Dr Street is also interested in developing precision therapy for IBD, in the role that the microbiome and diet play in IBD pathogenesis, and the intersection of IBD and fertility and pregnancy.

Nuestra siguiente experta es la Dr. Sarah Streett, que es la Directora Clinica de Enfermedad de Colon Inflamable de Standford. Pero no es todo... La Dr. Streett es miembro del Consejo Consultivo de Crohn's y Colitis. Cumple varios roles de liderazgo dentro de la Asociación Americana de Gastroenterologia (AGA). Ofició como empleada especial del gobierno en la FDA y representó los intereses de gastroenterologos y sus pacientes en Capitol Hill. La Dr. Streett fue reconocida recientemente por la Fundación de Crohn's y Colitis local como "Campeona de Esperanza" en el 2018 por su impacto en la vida de gente con la enfermedad de Crohn's y colitis ulcerosa.

La Dr. Streett enfocó su carrera en tratar gente con IBD y ahora esta conectando gente con tratamiento multi-disciplinario y ayudando a la gente a encontrar una oportunidad de involucrarse en el estudio clínico. La Dr. Streett también esta interesada en desarrollar una terapia precisa para IBD, sobre el rol que el microbioma y la dieta juegan en la patogenesis de IBD y la intercección de IBD y fertilidad y embarazo.

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