Unique | Understanding Rare Chromosome and Gene Disorders

Time 2020-09-27 03:03:15

Web Name: Unique | Understanding Rare Chromosome and Gene Disorders

WebSite: http://www.rarechromo.org

ID:61113

Keywords:

Rare,Understanding,Unique,

Description:

APPLY TO BECOME A MEMBER If you would like to register on our confidential database for a Unique Family Membership or for a Professional Membership please complete the application form below and make sure to tick/check the consent box or we'll not be able to contact you. One of the Unique helpline team (Beverly, Arti, Sarah or Francesca) will respond within 7 days with your membership number, so please watch out for our reply email (including your spam folder!). Family Membership is open to those affected by a Rare Chromosome Disorder or certain Autosomal Dominant Single Gene Disorders causing as a minimum learning disability/developmental delay, among other symptoms. Unique does not cover Autosomal Recessive Single Gene Disorders, Metabolic Disorders or Mitochondrial Disorders. Please tick this box if you are happy for us to contact you to get you registered and tell you how we can support you. Alternatively you can send us your details, with your consent for us to register you as a member and contact you in the future, via email, post or phone:E-mail: membership@rarechromo.orgTel: +44 (0)1883 723356Post: Beverly Searle PhD, Unique Chief Executive Officer, The Stables, Station Road West, Oxted, Surrey, RH8 9EE, UK We need your help more than ever! Please help us support families at this difficult time by making a donation if you can. Thank you Donate Unique is a small charity supporting, informing and networking with families living with a Rare Chromosome Disorder or some Autosomal Dominant Single Gene Disorders associated with learning disability and developmental delay, among other symptoms. Sound like your family? Do take time to explore our site, especially the Families area. Join Us Please click the button below for details of our self-help guide to Isolation, full of useful resources, and NEW general advice regarding Coronavirus (Covid-19) for patients with rare genetic disorders. Covid-19 Update Free Disorder Guides Click here to download our free guides on specific chromosome and gene disorders VIEW GUIDES 9p minus syndrome research project (USA only) Dr. Cole and his team are embarking on an expansive... Read more NEW interactive online patient tool for people with rare diseases to better understand their risk of Covid-19 A new patient interactive tool that allows people with rare... Read more The CoIN Study Covid-19 impact on wellbeing of families of children with rare... Read more Please help us carry on by making a donation today Only with your help at this time of uncertainty can we go on providing information and support to anyone affected by rare chromosome and gene disorders. All donations, however large or small, make a real and lasting difference. THANK YOU FOR YOUR GENEROSITY! DONATE NOW Site editor Beverly Searle BSc(Hons) PhD CBiol MRSB Rare Chromosome Disorder Support Group. Registered charity no. 1110661

TAGS:Rare Understanding Unique 

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