EURORDIS - The Voice of Rare Disease Patients in Europe

Time 2021-01-10 23:12:32

Web Name: EURORDIS - The Voice of Rare Disease Patients in Europe

WebSite: http://www.eurordis.org

ID:163120

Keywords:

Voice,of,EURORDIS,

Description:

RareConnect.org, together with the world s leading rare disease patient groups, offers global online communities allowing people to connect around issues which affect them while living with a rare disease. EURORDIS-Rare Diseases Europe is a unique, non-profit alliance of 949 rare disease patient organisations from 73 countries that work together to improve the lives of the 30 million people living with a rare disease in Europe. Our members Our mission statement EURORDIS TVWatch EURORDIS TV's video of the month!Watch and share the launch video of the HTx-project: personalised treatments and reimbursement policies through Artificial Intelligence and Real World Data. We are grateful for the financial support of the EURORDIS website by: This website received funding under an operating grant from the European Union’s Health Programme (2014-2020) The voice of rare disease patients in Europe The international voice of people living with rare diseases Bringing together patients, families and experts to share experiences in a moderated multi-language forum. The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiative Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiative

TAGS:Voice of EURORDIS 

<<< Thank you for your visit >>>

EURORDIS - Rare Diseases Europe, is a non-governmental patient-driven alliance of rare disease patient organisations representing 949 rare diseases patient organisations in 73 countries. We are dedicated to improving the quality of life of all people living with rare diseases in Europe

Hot Websites