Home - Kaleidoscope Fighting Lupus
Time 2021-09-20 17:18:06Web Name: Home - Kaleidoscope Fighting Lupus
WebSite: http://www.mollysfund.org
ID:196852
Keywords:
Kaleidoscope,Home,Lupus,Description:
We are a nonprofit organization and a community devoted to advancing our mission of supporting those living with lupus.Our mission is to EDUCATE the public and to INFORM the medical community about lupus, to ADVOCATE for earlier life-saving diagnosis, to SUPPORT people living with lupus and to COLLABORATE with government and foundations to fund research toward a cure.I was diagnosed with lupus in 2008and have not worked from the fatigue I fight daily. I also have been fighting GERD, Raynaud's, depression, anxiety, Parkinsons, incontinence, osteoporosis, arthritis, anemia, migraines, degenerative disc disease, memory loss, non alcoholic liver disease, and they just keep adding. On my good days I smile and get my chores done, and fight for disability.They think I don't qualify, and this is an ongoing 5 year battle. So I smile and say I wont give in!–– MistiI'm a 65 year old lupus patient who has had lupus since 1982. It took 3 months before the doctors could figure out what was wrong with me. Once they knew what I had, they told me that I needed to find a doctor who worked in that field. Over the years lupus has killed my kidneys and my son gave me a kidney in 2014. Lupus has given me gout, CHF, Rheumatoid Arthritis, Raynaud's disease, Asthma, Sleep Apnea, A Fib, lupus induced high blood pressure and Paget's Bone disease.–– BrendaI was diagnosed with Lupus (SLE) 10 years ago after seeing several doctors. I am a survivor because although I had to give up the very active lifestyle I had training horses, working in film and TV as a horse wrangler & stunt woman I was able to put energy I did have into new endeavors, such as learning to play bass guitar to exercise my symptom of arthritis in my hands. To give me hope that life as I knew it wasn't over, it was just a new beginning! I'm a grandma to 2 loving boys, I'm blessed!–– SusieTAGS:Kaleidoscope Home Lupus
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