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Coronavirus and bleeding disorders - Frequently asked questions

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Support those with bleeding disorders in the UK

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Push for higher standards of treatment and care for everyone with a bleeding disorder

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The Haemophilia Society isthe only UK-wide charity forall thoseaffected by ageneticbleeding disorder. We help people with genetic bleeding disorders to lead fulfilling lives, make informed choices and to support and inspire others.

The content of this website is for information only,it is not intended to be a substitute for professional medical advice, diagnosis ortreatment.

The Haemophilia Society cannot give out any medical, diagnosis or treatment advice and recommend that you speak to your haemophilia team or GP directly for advice on your healthcare concern.

Find out what we do

What do you need help with today?My child is newly diagnosed

Finding out that you or your child has a bleeding disorder can be a stressful experience, and we’re here to help you to make sense of it all.

Newly DiagnosedSomeone I know has a bleeding disorder

There are lots of different bleeding disorders. Find out more about the different types of bleeding disorders and the treatment options available.

Diagnosis
Read more Members OnlySave the Date26 Feb 22 - 27 Feb 22 Newly Diagnosed Families WeekendOur Newly Diagnosed Weekends (NDW) are free events that support parents who have recently found
Read more Members OnlySave the Date05 Mar 22 Talking Red LiveThousands of women struggle with common symptoms – such as heavy periods and frequent bruising
Read more Members OnlySave the Date27 Jul 22 - 31 Jul 22 Youth Camp 2022If you have a bleeding disorder or you are a sibling of someone who does,
Read more See all events
Members StoriesSonyas storySonya, 54,lives just outside Hulland is one of five sisters.HerfatherhadhaemophiliaB–arare form of haemophilia and as
Read more Lynsey and JosephPeople can understandablyfind it really difficult when they are given ahaemophiliadiagnosis, and worry that it’s
Read more Mardins StoryMy name is Mardin, and I am 25 years old. I am from Iraq. I
Read more Gemmas StoryCaring for someone living with a bleeding disorder in lockdown has taught me that the
Read more Read all members stories
Become a Member

Become a member of The Haemophilia Society free today. Fill in a simple form and we will send out a membership pack to you.

Join us nowCampaign with us

Push for fairness for people with bleeding disorders affected by contaminated blood. Join us in demanding just support packages.

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Our members and supporters do amazing things to raise funds for us. Challenge yourself or team up with friends to raise money.

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We can be found on all the usual online channels – Twitter, Facebook, e-mail. But if you’re more of a people person, we’re still on the end of a phone.

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Understanding Haemophilia B | Von Willebrand Disease

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Thank you to our sponsors

We are thankful to the companies below who have supported the update of our website in 2021:

Novo Nordisk has provided sponsorship to The Haemophilia Society to support with the costs of updating this website. Novo Nordisk has had no control or influence over the information/content included on this website unless where stated.

The update of this website was supported by a restricted grant from Chugai Pharma UK Ltd and Roche Products Limited. Chugai Pharma UK Ltd and Roche Products Limited has had no control or influence over the information/content included on this website unless where stated.