CHARGE Syndrome Foundation - Providing a better world for people with CHARGE

Time 2021-10-30 10:03:29

Web Name: CHARGE Syndrome Foundation - Providing a better world for people with CHARGE

WebSite: http://www.chargesyndrome.org

ID:215585

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description:The mission of the CHARGE Syndrome Foundation is to provide support to individuals with CHARGE and their families; to gather, develop, maintain and distribute information about CHARGE syndrome; and to promote awareness and research regarding its cause and management.

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eStore eNews HomeAbout CHARGE Overview Signs Symptoms Genetics: Diagnosis, Testing Recurrence Medical Management Development Outlook Our Role Impact About the Foundation Our Photos Our Videos History Our Stories Become a Member For Professionals Medical Professionals Psychologists/Behavior Therapists Education Professional Packet Educators Fellowships Upcoming Events For Families New Diagnosis Get Support Conferences Resources Medical Features Therapies Education Behavior Communication Adulthood Recreation Advocacy Research Foundation Supported Research Fellowships Opportunities for Families News Reports Scientific Advisory Board Clinical Advisory Board Get Involved Contact Us Become a Member Donate Fundraising More Ways to Help Sign Up for Our eNews Awareness Items A better world for people with CHARGE syndrome.

The CHARGE Syndrome Foundation champions the lifelong potential of people with CHARGE syndrome through outreach, education and research.

Profiles in CHARGE

Get to know our CHARGE community and read inspiring stories of overcoming feeding challenges to stories honoring caregivers. Meet individuals with CHARGE and share in the stories of their hobbies and hopes. Welcome to Profiles in CHARGE.

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Volunteer Spotlight

Tracey Busby says she’s inspired to fundraise for the Charge Syndrome Foundation because it has made a difference in the life of her adult son with CHARGE, as well as her own life and the life of her family.

“Throughout my son Sullivan’s life, I have accessed the various resources that the Foundation has compiled to help us navigate the education and medical system. But the biggest emotional impact for my family was finally attending our first Charge Syndrome Conference in Chicago,” Tracey says. “To find a community and people who just get it was emotional and uplifting.

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318 Half Day Rd. #305 · Buffalo Grove, IL 60089 · Office (516) 684-4720 · Toll-Free (800) 442-7604 · Fax (888) 317-4735 · info@chargesyndrome.org
Copyright 2021 CHARGE Syndrome Foundation · Website by Kinetic · Sitemap· State Nonprofit Disclosures

CHARGE Syndrome Foundation, Inc. is a 501(c)(3) tax-exempt organization and your donation is tax-deductible within the guidelines of U.S. law.
It is our goal to make navigation and availability of resources as user-friendly as possible. If you need help finding a resource or have a suggestion, please let us know at info@chargesyndrome.org.

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The mission of the CHARGE Syndrome Foundation is to provide support to individuals with CHARGE and their families; to gather, develop, maintain and distribute information about CHARGE syndrome; and to promote awareness and research regarding its cause and management.

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