OI Foundation

Time 2020-10-26 06:02:55

Web Name: OI Foundation

WebSite: http://www.oif.org

ID:94679

Keywords:

OI,Foundation,

Description:

COVID-19 Update The OI Foundation is making every effort to provide the most up-to-date information about the COVID-19 pandemic for the OI community. If you have received a confirmed diagnosis or are presumed positive by a medical professional, please contact us at bonelink@oif.org. All information we receive is critical to our medical professionals, researchers, and OI community members. Updates from the OIF Information Center The Foundation is continually developing new information resources in response to the needs of families, individuals, and professionals working with those affected by OI. Resources The OI Foundation provides  additional resources including the OI Clinic Directory, OIF Newsletters, and Support Networks. Events OIF Regional Conferences, and OI support group meetings are held across the country. Attend an upcoming event in your area! Research Research is an important part of the OI Foundation’s mission. Learn more about available OIF research grants and how to participate in current OI studies. At the OI Foundation, we believe nothing short of a real transformation is needed to reform the systems that continue to perpetuate racism in this country. We stand firmly with those calling for immediate and concrete change. The OI Foundation is conducting an internal review of our programs and services to determine how we can be more inclusive as a Foundation and in the services we provide.  We will release more information with action steps at a later date. Please read a full statement about our commitment on the OIF s Mission page. Learn More Enroll in the OI Registry! The OI Registry is a database of individuals with OI (parents may enroll on behalf of their children) who are interested in participating in OI research. OI research announcements, surveys and questionnaires will be sent to you via email and you may choose which ones, if any, you would like to complete. Sign Up Today Join the 1970 Society Founded in 1970, the OI Foundation has provided information and resources to families living with OI for the past 50 years. Members who give $1,000 this year will become part of the 1970 Society commemorating the OIF s 50th anniversary, as well as receive a limited edition OIF 50th anniversary lapel pin and a miniature Goldie golden anniversary teddy bear. Learn More Updates from the OIF Stay up-to-date with the OI Foundation! Check out the OIF Updates page to view announcements including the OIF s current programs, accomplishments, and news for the OI community. OIF Updates Sign up to receive emails from the OI Foundation including the OIF monthly e-newsletter, research updates, and upcoming event information! Your browser does not support JavaScript!. Please enable javascript in your browser in order to get form work properly. Join the OI Registry Individuals with OI (18+) and parents of children with OI are encouraged to join the OI Registry. Once enrolled, you will receive information on upcoming studies and online surveys about OI. Your participation in these studies helps move OI research forward. Upcoming Events Fundraising events, OIF Regional Conferences, and OI support group meetings are held across the country. Attend an upcoming event in your area! Current Studies Supporting research is an important part of the OI Foundation’s mission. Your participation in current studies helps move OI research forward. Rare Bone Disease Alliance The OIF is proud to be a member of the Rare Bone Disease Alliance (RBDA). The RBDA is a patient advocacy network focused on educating medical professionals, expanding research, and assisting patients and communities affected by rare bone diseases.

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