Hydrocephalus Association

Time 2020-12-15 11:03:42

Web Name: Hydrocephalus Association

WebSite: http://www.hydroassoc.org

ID:134840

Keywords:

Hydrocephalus,Association,

Description:

Read stories from our hydrocephalus community! These amazing individuals are living life to the fullest regardless of the challenges their condition brings and beating the odds. MORE INFO It’s important to know that you’re not alone as you deal with hydrocephalus. We encourage you to explore the resources available in your area. Be informed and stay connected! MORE INFO Changing Treatments: Converting from a Shunt to an ETV for the Treatment of Hydrocephalus A recent study published in Neurosurgery looked at the success rate of converting from a shunt to an endoscopic third ventriculostomy (ETV) in pediatric and young adult patients. The study, with lead author Dr. David S. Hersh, retrospectively reviewed patient data from three children’s hospitals in the United States. MORE INFO Changing Treatments: Converting from a Shunt to an ETV for the Treatment of Hydrocephalus Dealing with your child’s hydrocephalus diagnosis can be overwhelming. It’s common to have countless questions that range from learning more about what hydrocephalus is to what one can expect a child’s experience to be across the life spectrum. If you’re a teen or young adult affected by hydrocephalus, we want you to know that you are not alone. Browse our teen and young adult pages to learn about resources to help you. This is YOUR place for information and empowerment. A hydrocephalus diagnosis is overwhelming, whether you’re a recently diagnosed adult, someone who’s been living with the condition for many years, or a friend or family member. Here you will find information enabling you to have more control of your life. A normal pressure hydrocephalus (NPH) diagnosis is often confusing, complex, scary and frustrating. For those living with NPH and their caregivers, staying informed about the condition is essential to managing care. It’s important to know that you’re not alone as you deal with hydrocephalus. The Hydrocephalus Association’s Community Network provides localized support, education and empowerment through community. Our support staff shares knowledge that comes from personal experience with hydrocephalus and from talking with people who live with the condition. We are here for you by phone and email. We also provide programs and support services to connect you with peers, volunteers and medical professionals. Diana Gray, HA President and CEO, was named Chairperson of the National Health Council (NHC) Board of Directors for 2021. She was elected to the role at the NHC s annual membership meeting this week. A recent study published in Neurosurgery looked at the success rate of converting from a shunt to an endoscopic third ventriculostomy (ETV) in pediatric and young adult patients. The study, with lead author Dr. David S. Hersh, retrospectively reviewed patient data from three children’s hospitals in the United States. Earlier this year, Rhaeos won MedTech Innovator s 2020 Global Competition. In a recent conversation with Rhaeos CEO Anna Lisa Somera, Somera discussed the significance of the award and how FlowSense can improve the way hydrocephalus is managed. We can t thank you enough for donating to the Hydrocephalus Association for GivingTuesday. It s truly an honor to have your support! Were pleased to announce the 2020 Hydrocephalus Association Scholarship Award Recipients. HA’s scholarship program was established in 1994 to provide financial assistance to capable and promising teens, young adults, and adults who live with the ongoing challenges and complexities of hydrocephalus. In addition to celebrating Hydrocephalus Awareness month, the Hydrocephalus Association has been tracking the ins and outs of what s happening on Capitol Hill. Read our latest advocacy update! Amanda Harrinauth is a poet, author, life coach and Special Olympics athlete living with hydrocephalus, vision impairment and autism. For Hydrocephalus Awareness Month, she wrote a poem to inspire others.  Linda Riley has joined the Hydrocephalus Association as the new National Director of Development. Linda brings more than 20 years of fundraising experience to this position. A new study published in the Journal of Neurosurgery: Pediatrics assessed quality of life and mental wellbeing of both children with hydrocephalus and their caregivers. September is Hydrocephalus Awareness Month – our chance to bring national attention to the over one million Americans living with hydrocephalus. Let s make some noise on social media by showing what YOU would do to end hydrocephalus.  If you respond and have not already registered, you will receive periodic updates and communications from Hydrocephalus Association.

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