Scleroderma Research Foundation | SRF | Research for a Cure

Web Name: Scleroderma Research Foundation | SRF | Research for a Cure

WebSite: http://www.srfcure.org

ID:327035

Keywords:

Foundation,Research,Scleroderma,Cure

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In Loving Memory of Bob Saget

May 17, 1956 - January 9, 2022
A scleroderma champion, Board Member of the SRF, and beloved friend

Tribute EventTribute Gifts

2022 Research
Challenge

Double your impact:
All gifts matched (up to $50k)
through July 15th!

Donate Today




Celebrating 25 Years of For Hope

Now available to watch online

Watch the Full 1996 Film

People living with scleroderma can help us find a cure.

Participate In Research

“We are in business to go out of business.”

Learn About Our Mission

A gift to help you secure your own future

Create your free will 1 1

Learn MoreSponsor/Tickets

In Loving Memory of Bob Saget

May 17, 1956 - January 9, 2022
A scleroderma champion, Board Member of the SRF, and beloved friend

Tribute EventTribute Gifts

2022 Research
Challenge

Double your impact:
All gifts matched (up to $50k)
through July 15th!

Donate Today




Celebrating 25 Years of For Hope

Now available to watch online

Watch the Full 1996 Film

People living with scleroderma can help us find a cure.

Participate In Research

“We are in business to go out of business.”

Learn About Our Mission

A gift to help you secure your own future

Create your free will

Participate in Research

You can help advance research for a cure for scleroderma by participating in studies.

Learn More

Meet the
Scientific Advisory Board

All of SRF’s research is led by our world-class Scientific Advisory Board.

Meet the Board

Get Involved

Join the Cure Crew and help make a difference by raising awareness and getting us closer to a cure for scleroderma.

Join Now

Our Mission

The mission of the Scleroderma Research Foundation (SRF) is to fund and facilitate the most promising, highest quality research aimed at improved therapies and, ultimately, a cure for scleroderma.

Learn More About Our Story

What We Do

The Scleroderma Research Foundation is the United States’ leading 501(c)3 nonprofit investor in scleroderma research and is laser-focused on finding a cure for scleroderma, a rare and deadly disease. Led by the most distinguished scientific minds, the SRF research program seeks to understand scleroderma by facilitating collaboration among the world’s top scientists and medical institutions.

We strive to increase awareness and knowledge of scleroderma among those living with scleroderma, the medical community, and the general public. As an innovator in scleroderma research, the SRF is uniquely qualified to provide those living with scleroderma, the medical community, and the general public with the most up-to-date and relevant news and information about complications, treatments, and related research.

Learn More About Us

Living with Scleroderma

Our ultimate goal is to find a cure for scleroderma. Until that happens we will raise awareness and provide education for people and their loved ones who are living with this disease.

About Scleroderma

Scleroderma is a complicated disease that often goes unrecognized, misdiagnosed, and untreated.

Learn More About Scleroderma

Participate in Research

Research is the best hope for finding a cure for scleroderma. You can help by participating in research studies.

Learn How You Can Participate

Join the Cure Crew

Help us do more to find a cure for scleroderma by raising funds and awareness.

Join Cure Crew

Learn More About Living With Scleroderma »

Kheesa’s Story

Kheesa’s symptoms started in 2005, but she wasn’t diagnosed with scleroderma for two years—until after the birth of her first child.

Read more about her motivation for fighting scleroderma and why research is important to her.

Read Kheesa’s Story

Scleroderma Statistics

4 out of 5
Patients are women

30–50
Average age of onset

80%
of SRF’s annual budget devoted to research

Our Research

All of the SRF’s funded research is focused on finding better treatments and ultimately a cure for scleroderma. Dive deeper into the details of our medical research efforts.

Our Research Program

The SRF’s research program actively seeks out and recruits clinical and scientific experts to join the scleroderma research community.

Learn More

Science Workshop

Our annual Science Workshop brings together our Scientific Advisors, funded researchers, applicants, and outside industry partners for intensive evaluation, discussion, brainstorming, and collaboration.

Learn More

Current Funded Projects

Our research projects are on the leading edge of scleroderma research.

Learn More


Learn More About All Our Scleroderma Research »

OUR SIGNATURE EVENT

Cool Comedy
Hot Cuisine, a tribute to Bob Saget

Join us for a special version of the SRF’s signature event, Cool Comedy • Hot Cuisine which will take place this September in Los Angeles as a tribute to Bob.

Learn More
SUPPORT US

Help Advance Our Research

The Scleroderma Research Foundation funds research aimed at understanding the pathogenesis of scleroderma and promoting the design, development, and pilot-testing of hypothesis-driven, innovative, therapeutic approaches.

Learn More About UsOur StoryAnnual ReportBoard of DirectorsStaffScientific Advisory BoardOur DonorsFAQContactJoin Our Mailing ListLiving With SclerodermaAbout SclerodermaParticipate In ResearchResourcesGlossary of TermsOur ResearchAbout Our Research ProgramScience WorkshopGRASPCONQUERCurrent Funded ProjectsCurrent InvestigatorsApply for a GrantPast Funded ProjectsCool Comedy • Hot CuisineEvent HubCool Comedy • Hot CuisineAbout CCHCCCHC GallerySupport UsDonateWays to GiveCure Crew#SaySclerodermaPrivacy Policy
Social Media Code of Conduct

© 2022 Scleroderma Research Foundation. All Rights Reserved. The Scleroderma Research Foundation is a 501(c)3 non profit organization (Tax ID #68-0087234).

twitterfacebooklinkedinyoutubeinstagram Close MenuAbout UsOur StoryAnnual ReportFor Hope (1996 Film)Board of DirectorsStaffScientific Advisory BoardOur DonorsFAQLiving with SclerodermaAbout SclerodermaAbout Our Research ProgramsPatient ForumParticipate In ResearchGRASP ProjectCONQUER RegistryClinical TrialsResourcesI’ve Been Diagnosed. What Do I Do Now?Complications and TreatmentsTreatment CentersWebinarsGlossary of TermsOur ResearchAbout Our Research ProgramScience WorkshopGRASP ProjectCONQUER RegistryCurrent Funded ProjectsCurrent InvestigatorsApply for a GrantPast Funded ProjectsCool Comedy • Hot CuisineCool Comedy • Hot Cuisine 2022About CCHCLast Year’s CCHCCCHC GallerySupport Us2022 Research ChallengeDonateHonoring Bob SagetVolunteer with The Cure CrewWays to GiveWire Transfer or Stock GiftsTribute or Memorial GiftsBequest GiftsBeneficiary DesignationIRA DistributionEmployer Matching GiftsWorkplace Payroll DeductionCorporate GivingOnline FundraisersDonor Advised Fund#SaySclerodermaDONATEStoriesFAQContact You are leaving the Scleroderma Research Foundation Website.

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You have selected a link to a website that exists outside of the srfcure.org website. The Scleroderma Research Foundation provides access to these sites as a service to srfcure.org visitors and is not responsible or liable for the content and information presented within any non- Scleroderma Research Foundation external site. Following a link to an external page is at your own risk.

To learn more about scleroderma-related clinical trials, visit <a class=”external-link-warn nectar-button large” style=”margin-top: 42px; border-color: rgba(0, 174, 239, 0.75); color: #0975e0; visibility: visible; background-color: transparent;” href=”https://clinicaltrials.gov/ct2/results?cond=Scleroderma&Search=Apply&recrs=b&recrs=a&age_v=&gndr=&type=&rslt=” target=”_blank” rel=”noopener” data-color-override=”#0975e0″ data-hover-color-override=”false” data-hover-text-color-override=”#ffffff”><span style=”font-weight: 400;”>Continue to ClinicalTrials.Gov …</span></a></span>

You have selected a link to a website that exists outside of the srfcure.org website. The Scleroderma Research Foundation provides access to these sites as a service to srfcure.org visitors and is not responsible or liable for the content and information presented within any non- Scleroderma Research Foundation external site. Following a link to an external page is at your own risk.

To learn more about the 23andMe Systemic Sclerosis Research Study and enroll: Continue to 23andMe …

You have selected a link to a website that exists outside of the srfcure.org website. The Scleroderma Research Foundation provides access to these sites as a service to srfcure.org visitors and is not responsible or liable for the content and information presented within any non- Scleroderma Research Foundation external site. Following a link to an external page is at at your own risk.

Continue to Survey …






TAGS:Foundation Research Scleroderma Cure

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